The kids of parents with MS will become more mature

My daughter was 9 when I was diagnosed. I let her come to the doctors with me and he always included her in our conversations. She is now 21 and a mom herself. I think seeing me be strong and deal with my struggles and always being honest with her has made her a very compassionate but strong person.

Not really she wasn't mean about it i was like 13 when she got diagnosed so i Older n understood moré. My brother Was a baby too and we just dealt With it. We didáctico dwell on it we make she takes her medicine and we make sure if she's in pain we help her out. We always worry but we try n be strong for her and she's always been strong for us. She didn't tell us deal with it like that she sat us down n explained it to us. Jus be able to answer her questions n don't show her fear if ur scared shell b scared. MS sucks but we can't let it get us down u kno. We will beat it

I don't know what your situation is, but I have a lot of special needs and both of my children have always stepped up to fill them. They are aware their needs are my first priority and subsequently my needs are their first priority. We have an open line of communication with a mutual level of respect, love, and appreciation for each other. For example, I don't quite make it to the bathroom, which means I am all out of energy and my brain is ready to shut off, so I call for my daughter's help. She gets me a change of clothes and sets me up in the shower. As she is cleaning up the mess I ask her, jokingly, "Is this going on your resentment list?" She laughs and says, "You know it!" Then later, I make it a point to express my appreciation and ask her if she needs anything. Sometimes she has something for me to help her with, but mostly she just gives me a hug. With my son I make a list so he can plan it around his schedule and have control.
I've talked to a number of kids with an MS parent and the general sense is sometimes feeling out of control and like they can't have their own lives.

My son was 14 when I was diagnosed in 2009...I'm still mobile but he knows I get sick a lot (meaning tired and maybe diarrhea and simple stuff like that), he messes with me and says "Mom u r always sick" or "Mom u r always tired" then I tell him "James ur room is still a mess" and "You have not been cleaning the shower or doing the dishes". Your health might be declining but your spirit and your person needs to stay strong. I have also started getting my personal paperwork together just in case, then everything will be taken care of...I also started kissing my son every morning before I leave for work...He is a young man...does not and will not kiss MOM...so MOM has to sneak up on the little bugger while he is sleeping...lol...stay strong