Connect with others who understand.

sign up log in
Resources
About MyMSTeam
Powered By

MyMSTeam Results Are In: Here’s What You Had to Say About Living With MS

Updated on June 24, 2016

In December 2014, we asked MyMSTeam members, like you, to participate in a survey about what matters to them in MS. We sent this survey because we believe that you should have a voice in how new MS treatments are developed and how companies prioritize the MS symptoms to tackle next. All the responses were anonymized and no personally identifying information was shared with anyone.

As promised, we are now sharing the results with you.

We believe that when you are diagnosed with MS, getting perspective and connecting with others with MS can help you better manage your life with the disease. Throughout the year we’ll continue to share research results like these with you. Even if you did not directly participate in this survey, we are writing this blog post as if you had, as you are part of the MyMSTeam community, and we want you to feel part of this information-sharing process. We’ll keep you posted on upcoming surveys.

Here are a couple of highlights from this “What Matters in MS” survey:

  • The top three DMTs (disease modifying therapies) were Tecfidera, Tysabri, and Copaxone.
  • More than half indicated they had switched MS therapies within the past two years, and the majority of them switched to an oral drug like Tecfidera, Gilenya, and Aubagio.

Below you’ll find the rest of the results “What Matters in MS” survey. (Click the infographic below to enlarge it.)

Infographic_MS_WhatMatters

All updates must be accompanied by text or a picture.

Related articles

A survey of MyMSTeam members found that fatigue was the multiple sclerosis (MS) symptom with the ...

MyMSTeam Survey Finds Fatigue Has Greatest Impact on Daily Life

A survey of MyMSTeam members found that fatigue was the multiple sclerosis (MS) symptom with the ...
The emotional toll of living with multiple sclerosis (MS) can have a major impact on a person's q...

The Impact of Multiple Sclerosis on Emotions and Quality of Life

The emotional toll of living with multiple sclerosis (MS) can have a major impact on a person's q...
It’s no secret that living with multiple sclerosis (MS) can complicate daily life. MyMSTeam condu...

Steps To Lessen the Impact of Multiple Sclerosis

It’s no secret that living with multiple sclerosis (MS) can complicate daily life. MyMSTeam condu...
We asked and you answered! We posted this question: “What bits of ‘advice’ do you wish people wou...

Your Answers: The Worst MS Advice (Infographic)

We asked and you answered! We posted this question: “What bits of ‘advice’ do you wish people wou...
Summary: In a recent survey of the MyMSTeam community, 85% of respondents said they’d want MyMSTe...

The Results Are In: 85% of the MyMSTeam Community Want Better Access to Clinical Trials for MS

Summary: In a recent survey of the MyMSTeam community, 85% of respondents said they’d want MyMSTe...

Recent articles

Relapses, or periods of increased symptoms and disease activity, are common in relapsing forms of...

How Long Does an MS Relapse Last?

Relapses, or periods of increased symptoms and disease activity, are common in relapsing forms of...
Multiple sclerosis (MS) relapses are different for everyone.An MS relapse, or flare-up, is the ap...

What Does an MS Relapse Feel Like?

Multiple sclerosis (MS) relapses are different for everyone.An MS relapse, or flare-up, is the ap...
People with relapsing forms of multiple sclerosis (MS) may go through periods of new or worsening...

8 Symptoms of MS Relapse: How To Know if You’re Having a Flare

People with relapsing forms of multiple sclerosis (MS) may go through periods of new or worsening...
Maintaining independence is a concern for many people with multiple sclerosis (MS). And everyone ...

6 Resources for Independent Living and Managing MS

Maintaining independence is a concern for many people with multiple sclerosis (MS). And everyone ...
Multiple sclerosis (MS) is an autoimmune condition in which a person’s immune system attacks the...

How Damaged Myelin Affects Multiple Sclerosis

Multiple sclerosis (MS) is an autoimmune condition in which a person’s immune system attacks the...
When a person has advanced multiple sclerosis (MS), they experience extreme physical impairment a...

Advanced Multiple Sclerosis: 4 Symptoms and 8 Ways To Manage

When a person has advanced multiple sclerosis (MS), they experience extreme physical impairment a...
MyMSTeam My multiple sclerosis Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close