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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Stopped Taking Amypra? What Are Your Experiences Before And After Stopping.

Anyone Stopped Taking Amypra? What Are Your Experiences Before And After Stopping.

I've been on Amypra over 2.5 years. At first, I felt it was doing something positive for me ... not so much now. I asked by neurologist what to do ... he told me to stop taking it and I would be able to figure out within days if it was helping or not. Anyone who might be able to share what happens with and without amypra, I'd greatly appreciate your insight ... I've read volumes of info online ... thanks

posted over 8 years ago
A MyMSTeam Member said:

Well....I stayed off Amypra for 6 days and my walking deteriorated to the point I was on the floor more than standing...it wasn't Purdy .. trust me ...my legs, feet, arms, elbows are suffering from the assault of the tile floors ... ouchie momma!!!!

So I've been back on Amypra now for 3 days, and I certainly notice a HUGE difference in my walking, my gait, my balance and my visits to the floor ... zero falls since I went back on this drug. Who'd of thunk it ..week ago, I would have bet it wasn't a drug necessary ... ohhh silly me ...

posted over 8 years ago
A MyMSTeam Member said:

@A MyMSTeam Member I use both ... mostly a cane, unless I'm going out for a sustained period of time, then a rollator, so when I get tired, I just sit for a little while then continue on.

posted over 8 years ago
A MyMSTeam Member said:

Know how you feel

posted over 8 years ago
A MyMSTeam Member said:

thanks for the insight .. I am now on day 6 of no ampyra and have fallen everyday at least twice ... sucks ... so tomorrow I'll go back on it to see if it helps my balance and helps reduce the number of falls .. grrrrrr .. hope it does something ... thanks again

posted over 8 years ago
A MyMSTeam Member said:

I have been on Ampryra for about ayear now and the only thing it does is prevent me from walking like I have two by fours as legs I still fall.

posted over 8 years ago
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