I have sjogrens. DX.from mri with contrast and blood test. Neuro sent me to rheumy and.that doc sent me.to UT Southwest. Put me on plaquenel. Start low dose and increase in 12,weeks. Medicine takes 3-6 months to show if it will work. After 12 weeks he will start me on meds for saliva.production.

UT Southwest believes I do have underlying dymylinating neuro issues and need to continue with my neuri

My neurologist send me to a rheumatologist shortly after he told me I had Sjogrens and she ask me.." Why are you here? What do you want me to do?" I did not go back to see her. And he has not mentioned it again either. So my assumption was, must not be a big deal. I can say that I have had to have cataract surgery on both eyes this year, my eye doctors keep a very close watch on my eyes for the extreme dryness, and I am only 54 years old. I don't know if the Sjogrens exacerbated the cataracts or not. Makes me wonder though...

This sounds funny but when I get dry mouth, especially in the evening, I just grab a popsicle. It sucks being cold and eating something cold but it helps so much.

@A MyMSTeam Member ~ It's interesting that the rheumatalogist told you nothing "needed" to be done. I just read about the syndrome at a site for a clinic devoted only to Sjogren's, and they talk about how it can get progressively worse for some and affect different parts of the body, including joints, liver, pancreas and others. Perhaps there is nothing that CAN be done, but to say nothing needs to be done seems to lessen the seriousness of the disease. I found my family doctor to be very nonchalant about my symptoms as if they were insignificant. I wonder who to go to who will take me seriously.

http://www.nidcr.nih.gov/Research/NIDCRLaborato...

Also this video was informative: http://vimeo.com/16671907

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Was told lesions can be due to sjogrens. UT southwest said lesions are in the wrong place to be sjogrens related but Neuro says not true