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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Went Off Tysabri And Went To Pill Tecfidera And Saw Improvement In Symptoms?

Anyone Went Off Tysabri And Went To Pill Tecfidera And Saw Improvement In Symptoms?

I tested positive for JCV on low grade scared me because on Tysabri (18 months)My symptoms have gotten worse Ready for a change!!

posted February 17, 2014 (edited)
A MyMSTeam Member

I did last summer, it was a smooth transition too. Had Tysabri for the last time, then the very next day started Tecfidera. Tysabri, in the first place, stopped the progression dead in its tracks. No relapses or new symptoms for five years (despite being JC+), and today almost six years later, I haven't had any relapses, in fact I feel the same as I did while on Tysabri. According to my last MRI and neuro visit in October, my MS is stable. So I would say that Tecfidera has been good for me.

posted March 13, 2014
A MyMSTeam Member

Tysabri is NOT a miracle drug! There are no guarantees (as with anything) it will help. It will not help you get any better than you are right now. It is to stop or slow down the progression of MS. After about 8 years, I am STILL walking with my cane only for 98% of the time, so I'm very happy with that.

I think Tysabri has messed a LOT with my cognitive issues, though. Or perhaps that would've happened to me anyway, but since I don't know, I just blame the Tysabri!!LOLOL

posted February 19, 2014
A MyMSTeam Member

Abby, wondering if you saw my post awhile back. I asked my neuro about the 'scale' of my JCV, as another lady on here told me her's was not too high on the scale.

My neuro said there is no 'scale', and you either have JCV or you do not....nothing in between. He said just like a pregnancy test, you are or you are not...there are no in betweens.

So....I'm interested to hear what you have to say about that? I have total trust and confidence in my neuro, so I don't have an issue with it, but thought I'd pass it on to you tosee what you thought! :-)

posted February 18, 2014
A MyMSTeam Member

Hope to change soon

posted March 14, 2014
A MyMSTeam Member

I do blame Tysabri and doc for not listening to me when I say it not for me I sometimes wonder if docs get kickback for meds they prescribe

posted February 19, 2014

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