I tested positive for JCV on low grade scared me because on Tysabri (18 months)My symptoms have gotten worse Ready for a change!!
I did last summer, it was a smooth transition too. Had Tysabri for the last time, then the very next day started Tecfidera. Tysabri, in the first place, stopped the progression dead in its tracks. No relapses or new symptoms for five years (despite being JC+), and today almost six years later, I haven't had any relapses, in fact I feel the same as I did while on Tysabri. According to my last MRI and neuro visit in October, my MS is stable. So I would say that Tecfidera has been good for me.
Tysabri is NOT a miracle drug! There are no guarantees (as with anything) it will help. It will not help you get any better than you are right now. It is to stop or slow down the progression of MS. After about 8 years, I am STILL walking with my cane only for 98% of the time, so I'm very happy with that.
Abby, wondering if you saw my post awhile back. I asked my neuro about the 'scale' of my JCV, as another lady on here told me her's was not too high on the scale.
My neuro said there is no 'scale', and you either have JCV or you do not....nothing in between. He said just like a pregnancy test, you are or you are not...there are no in betweens.
So....I'm interested to hear what you have to say about that? I have total trust and confidence in my neuro, so I don't have an issue with it, but thought I'd pass it on to you tosee what you thought! :-)
I do blame Tysabri and doc for not listening to me when I say it not for me I sometimes wonder if docs get kickback for meds they prescribe
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