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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Memphis, TN

Has anyone ever used Acthar gel instead of steroids for a relapse? If so, did you like it? Were the side effects bad?

May 16, 2014
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A MyMSTeam Member

I've had one round of Catharines gel instead of solumedrol. The side effects for me were some flushing, hunger... Like any steroid it made me very short tempered. But the effects were a bit more mild then solumedrol. I preferred it to the solumedrol. Plus it worked!

May 16, 2014
A MyMSTeam Member

The nurse lied! It is thick. I does sting because its cold. Does NOT burn like heck! And it works!

May 17, 2014
A MyMSTeam Member

I have tried Acthar gel a couple of times. I think for 5 days each time. It did not really did not work for me. I refused to try it again for that reason and also the cost. My friend tried it and it too 2 5 day treatments before it helped her some what. But the Dr. says every one is different and has a lot of patients that do use it and is helpful to them.

May 18, 2014
A MyMSTeam Member

That was supposed to say Acthat gel!

May 17, 2014
A MyMSTeam Member

So are we supposed to keep it in the fridge? I have some here but its not in the fridge and does it have the inflammation properties in it as well? Long story short..I have it here, neuro didn't even tell me I was going to receive it because the last I knew, it was denied due to not being medically necessary so I don't even know how to use it

March 12, 2016

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