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A MyMSTeam Member asked a question 💭
Indianapolis, IN

Hi. I'm feeling a bit like a hypochondriac but wanted to ask this question...perhaps for reassurance.

I was in hospital Monday- Wednesday due to relapse after losing function of left leg and arm. Received 3 infusions and on oral taper now.

My concern is that I am experiencing moderate to severe pain in my entire left leg. Nothing similar to what I have experienced before.

I wonder if this is part of the healing process? This is my worst relapse and the recovery is obviously slow also.

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June 7, 2014
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A MyMSTeam Member

I just did my first round of steroid infusion about a week ago. I was lucky that my relapse was not noticed by me but by my neurologist on my MRI. Since then I haves has some very weird nerve pain. Especially yesterday while speaking with a co worker when I felt as thought I was jolted up my right arm. The steroids the sevens were not that bad and I didn’t get physically ill from them. Did experience a racing heart and had a difficult time sleeping.

February 8, 2018
A MyMSTeam Member

The steroids can cause discomfort as you come off of the infusions. Even the oral taper is not enough to overcome the huge doses involved with the IV pulse.

June 17, 2014
A MyMSTeam Member

I haven't experienced pain with steroids. But I didn't have it as a symptom before I took them. Let us know what your neuro says. I would be interested to learn. Good luck and I hope it passes soon.

June 10, 2014
A MyMSTeam Member

It could be part of healing process. It may be as simple as you had numbness with relapse and feeling is coming back. It could be neurological signal reaching one muscle but not the other which causes them to hurt. There are various things it could be. I would talk with your neurologist.

June 7, 2014

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