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A MyMSTeam Member asked a question 💭
Westmont, NJ

Feels like my wrists, elbows, humerous, knees, ankles, feet, spine, femur, and hips. I know I have nerve damage (documented) in my neck that causes severe pain in my left shoulder and has so for years, but this is different.

July 10, 2014
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Answer Summary

Members resonated deeply with the question about severe bone-like pain with MS, with many sharing that they also experience intense pain in... Read more

Members resonated deeply with the question about severe bone-like pain with MS, with many sharing that they also experience intense pain in their wrists, hips, legs, and fingers that feels like broken or grinding bones. Several members shared helpful strategies including physical therapy, cortisone injections, Tommy Copper gloves, rest, heat and cold packs, and advocating for care at dedicated MS clinics with specialists. A recurring theme was the emotional relief of knowing they were not alone, along with frustration that many doctors still dismiss pain as a core symptom of MS.

A MyMSTeam Member

I sometimes have a difficult time determining if any aches and pains are MS or 'age appropriate'.
I'll be 60 this year and do have some close friends the same age without MS, however if you remove the MS factor I think I'm healthier probably from living with this for almost 30 years, I seem to approach life a bit different.

July 10, 2014
A MyMSTeam Member

My right ankle will feel like I broke it from time to time. It's definetely hard to explain to people why I'm limping. Yesterday I was having a hard time walking, it felt as though I had broken bones. It's an annoying, frustrating and painful part of MS

July 17, 2014
A MyMSTeam Member

I'm glad you posted this, I thought I was crazy. I have "bone" pain and being a nurse my first thought was there's no way my bones could possibly hurt.

July 10, 2014
A MyMSTeam Member

I am in a lot of pain today. Overall stiffness and some swelling in my hands. But there have been days when my legs hurt so much I feel like if they would just break I would have relief.

July 17, 2014
A MyMSTeam Member

Yes! Before my MS diagnosis, my doc was thinking that I may have a bone marrow disorder. I have had doctors that dismiss it and others that speculate that it is common for people with an auto-immune disorder to be susceptible or predisposed to another. I wish I had a concrete answer myself (would like to know definitively if it is MS releated). If you find an answer, let me know :)

July 10, 2014

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