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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Pain

A MyMSTeam Member asked a question 💭
Orlando, FL

Does anyone else get frustrated when trying to explain your pain to others?

September 9, 2014
View reactions
A MyMSTeam Member

Well I’m lucky
Although it does suck having MS, poor cognition, difficulty walking, one thing I don’t have is pain

March 31, 2023
A MyMSTeam Member

Those not having our issues don''t seem to show interest in or take time to try to understand what we face on a regular basis. Because we look fine they feel we are fine & Might be looking for sympathy. BELIEVE ME I DON'T WANT YOUR SYMPATHY, I WANT YOUR UNDERSTANDING OR YOUR EFFORT TO TRY UNDERSTANDING!!

January 23, 2023
A MyMSTeam Member

I only found all you here on my ms team are the only ones who understands what I'm talking about. No one else gets it!

September 10, 2014
A MyMSTeam Member

Oh yes. I use these words feels like - some one is hammering nails into my legs, Someone is trying to break my legs, I have thousands of straight pins in my legs or arms, my legs are asleep, I can't feel my legs, I have shooting pains in my legs, or arms, down my back, in my neck. Also a twisting kind of pain, spasms. Use these words alot.

September 10, 2014
A MyMSTeam Member

I'm Happy for You, not experiencing pain is a plus because walking & cognition issues are enough to deal with, Adrian, U are in my Thoughts & Prayers!! Sincerely, Grace Hernandez❤️

April 1, 2023

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