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A MyMSTeam Member asked a question 💭
Yuba City, CA

Does anyone feel better from comforting words or actions from others?

September 17, 2014
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Answer Summary

Members shared honest and varied feelings about whether comforting words or actions help when living with MS, with many noting that genuine... Read more

Members shared honest and varied feelings about whether comforting words or actions help when living with MS, with many noting that genuine understanding matters far more than empty reassurances. A recurring theme was the lack of support from family and friends, with several members feeling invisible or dismissed, while many found their greatest comfort in this online community, their faith, or a devoted spouse. Several members also shared creative strategies for coping, like setting up a 'checking out' system with loved ones, focusing on grandchildren as motivation, and learning to clearly communicate specific needs rather than hoping others would figure it out on their own.

A MyMSTeam Member

Thanks for all the input! It was just a random thought my mom said, but after all the comments I would like to expand a bit: first, to me, understanding is a sort of comfort so I'm good with that. Second, I feel so bad for those of you without a good support system. I am surrounded by love so I am not in need there but I am greatly uplifted by all your kind posts. I do, however, offer my ears and shoulders to anyone who needs to vent or cry or any such thing. Being helpful fuels my hatefire for this disease and keeps me going! If you need my services, just ask;)

September 20, 2014
A MyMSTeam Member

I don't get comforting words from anyone. My family acts like MS doesn't exist and expects me to keep up and do everything they do. One family member even told me that I was abusing disability and should get off my butt and go back to work. I am on a walker indoors and a power chair outside. If it wasn't for this website I would be all alone.

September 25, 2014
A MyMSTeam Member

If I am having a really bad day and I'm in pain, knowing that someone loves me and doesn't like to see me this way is always a help. It helps my mood, even if it doesn't help the pain. Depression is common with us who have M.S. and having someone who supports us is always helpful.

September 19, 2014
A MyMSTeam Member

I would rather people be understanding then try to comfort me.

September 18, 2014
A MyMSTeam Member

My people just don't understand this MS and it effects. I don't get comforting words.

September 17, 2014

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A MyMSTeam Member asked a question 💭

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