Connect with others who understand.

Sign up Log in
Resources
About MyMSTeam
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Tysabri

A MyMSTeam Member asked a question 💭
Mount Shasta, CA

How fast do people see changes after there infusion? And what kind?

September 23, 2014
Be the first to like/hug
A MyMSTeam Member

I have been on tysabri for 16 months. I originally expected dramatic and immediate results. That didn't happen but that isn't to say that the changes have not been dramatic. When I started, I could barely walk, dizzy all the time and bone-tired. I was scared. Really scared but look at me now. I can walk long distances, my balance. Is great, lots of energy. You just couldn't see where I was headed until I got there. My husband and I think back to what I was doing a year ago and am amazed. So, stick with it and I hope your journey is as good as mine.

September 23, 2014
A MyMSTeam Member

@A MyMSTeam Member Great to hear Tysabri is working for you. Is there any side effects for you? I don't think it is available in Canada or I haven't heard of anyone on it. Sounds great for you.

September 24, 2014
A MyMSTeam Member

I really didn't notice a difference when I switches from COPAXONE to Tysbari however when I went without my infusion for 10 weeks I notices the effects of the MS, fatigue, weakness, balance issues, tingling sensations. After receiving the infusion I'm usually tired I'll go home and sleep, on the following day I did feel a lot better.

September 23, 2014
A MyMSTeam Member

Thanks so much @A MyMSTeam Member ....I'm praying I also have even a bit of that success....so it seems it just starts improving things very gradually.... To quote the grateful dead.... "I need a miracle"

October 5, 2014
A MyMSTeam Member

I had to go off tysabri because I was JC positive. It eliminated my hand tremors and my balance seemed improved. I noticed it about a few months of treatment.

September 23, 2014

Related content

View All

Tysabri

A MyMSTeam Member asked a question 💭
Spain

Elevated Heart Rate With Tysabri Has Anyone Experienced This. This Is My Second Time And I Am Going To Stop Tysabri

A MyMSTeam Member asked a question 💭
Niagara Falls, NY

Anyone Have Had Treatment With Tysabri? What Has Been Your Experience?

A MyMSTeam Member asked a question 💭
Harrisburg, PA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Lock Icon Your privacy is our priority.
Already a Member? Log in