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About MyMSTeam
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Received The New Med Lamtrada?

Has Anyone Received The New Med Lamtrada?

Lamtrada was approved by the FDA in Nov. or Dec. 2014. It's for those that have previously been on a treatment and failed.

posted March 3, 2015
A MyMSTeam Member

I'm in the extended trial. I had my first infusion in May 2009, 2nd in May 2010. Normal you have one on the third year, but I entered into the extended trial. I haven't had any relapses since. Just had a MRI and my lesions are still getting smaller! I recommend it highly!!!
It is expensive, most insurances cover it though.

posted March 8, 2015
A MyMSTeam Member

I received Lemtrada 2 & 1/2 weeks ago. When I was looking into it and still I find a group on Facebook extremely helpful. Search for 'Lemtrada for MS Treatment.' There is a wealth of information on there from people all over the world.

posted April 2, 2015
A MyMSTeam Member

@A MyMSTeam Member I am 3 months post and feel amazing! This is the longest I have gone without a relapse and no medication or treatment in a long time. I found the FB group very informative and supporting.

posted October 12, 2015
A MyMSTeam Member

I did 3 days first year. A little rough. He said sometimes he gives over 5 days because of dosage. Second year and every year after has been three days of 10 mls . I have had 4 treatments in 4 years. I was pretty bad when I started and this was like a hail mary for me. It has been a great drug. Little side effects so far. I do have a nodule on thyroid. I have had fewer relapses. Brain mri is showing improvement. I was lucky to enter an on going study so cost is covered right now.

posted August 4, 2015
A MyMSTeam Member

I had the treatment my 5 day treatment two weeks ago ago all I, can tell you is I believe it's the Holy Grail we've all been looking for for ms

posted July 29, 2015

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What People With MS Should Know About Getting a Second COVID-19 Booster Shot

What People With MS Should Know About Getting a Second COVID-19 Booster Shot

A MyMSTeam Member

Hi there; I read your comment about the vax. I really am sorry you feel that way, because look at the success rate for those fully vaxxed and boosted vs. those who chose to deny and are now… read more

posted 4 days ago

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