Connect with others who understand.

sign up log in
Resources
About MyMSTeam

Connect with others who understand.

sign up log in
Resources
About MyMSTeam

MyMSTeam Survey Finds Fatigue Has Greatest Impact on Daily Life

Posted on April 29, 2022
Article written by
Alison Channon

A survey of MyMSTeam members found that fatigue was the multiple sclerosis (MS) symptom with the greatest impact on daily life. MyMSTeam conducted a survey to better understand how living with MS affects MyMSTeam members. The survey was conducted in October 2021, and it included 643 MyMSTeam members in the United States who have MS.

The survey asked members about:

  • The physical, social, and emotional impact MS has on their lives
  • The steps they take to lessen the impact of MS

MyMSTeam shares the results of member surveys so our community can learn from others’ experiences.

MyMSTeam Members’ Most Disruptive Symptoms

Fatigue and lack of energy topped the list of symptoms, as 81 percent of members surveyed said these issues had the greatest impact on their quality of life. Physical limitations (76 percent) and muscle weakness (66 percent) were also common.

“Yesterday, fatigue hit me like a brick,” one member reported. Another shared, “The fatigue today is just unbearable.”

"When people think about multiple sclerosis symptoms, the focus is often on the impact of the disease on mobility,” said Beth Schneider, senior research director at MyHealthTeam. “Yet, fatigue is the most commonly experienced symptom. And this relentless fatigue can have a wide-ranging impact on quality of life.”

The Effect of MS on Quality of Life

Eighty-two percent of survey respondents reported that MS interferes with their quality of life. Members reported that MS complicates everyday chores (81 percent), causes stress (73 percent), interferes with an active social life (71 percent), and makes it hard to get around physically (71 percent).

“My mobility has declined,” one MyMSTeam member reported. “I now must use a walker in the house and a wheelchair in public. It’s a big adjustment.”

Another member commented, “I suffer from chronic, unrelenting pain and extreme fatigue. I miss my kids and so many events because of it.”

Graphical user interface, chartDescription automatically generated

How MyMSTeam Members Manage MS

MyMSTeam members also shared the steps they take to lessen the burden of MS. Members’ top ways of managing MS include learning about treatment options (82 percent), staying on their prescribed medications (81 percent), and having meaningful conversations with their neurologists (76 percent).

Members also reported managing their MS by receiving emotional support (69 percent) and by connecting with and learning from others (63 percent).

MyMSTeam members shared some tips: “Setting my intentions for the day and remembering not to be hard on myself. MS is still new to me, so I find myself frustrated a LOT when my body does not let me do things. Having a positive attitude is key, and I am not going to let it get me down.”

Others shared practical suggestions for adjusting to reduced stamina or limited mobility. “I can do nothing for more than a short period of time,” one member wrote. “But I have a rollator (rolling walker). Very helpful with mobility, and it even has a seat in case I need it.”

Graphical user interface, chart, applicationDescription automatically generated

Find Your Community

MyMSTeam is the social network for people with multiple sclerosis and their loved ones. More than 184,000 members come together to ask questions, give advice, and share their stories with others who understand life with multiple sclerosis.

How much of an impact does MS have on your emotions or daily life? What do you recommend to others who might be struggling with the impact of MS? Share your thoughts in a comment below.

All updates must be accompanied by text or a picture.
Alison Channon has nearly a decade of experience writing about chronic health conditions, mental health, and women's health. Learn more about her here.

Related articles

The emotional toll of living with multiple sclerosis (MS) can have a major impact on a person's...

The Impact of Multiple Sclerosis on Emotions and Quality of Life

The emotional toll of living with multiple sclerosis (MS) can have a major impact on a person's...
It’s no secret that living with multiple sclerosis (MS) can complicate daily life. MyMSTeam...

Steps To Lessen the Impact of Multiple Sclerosis

It’s no secret that living with multiple sclerosis (MS) can complicate daily life. MyMSTeam...
We asked and you answered! We posted this question: "What bits of 'advice' do you wish people...

Your Answers: The Worst MS Advice (Infographic)

We asked and you answered! We posted this question: "What bits of 'advice' do you wish people...
In December 2014, we asked MyMSTeam members, like you, to participate in a survey about what...

MyMSTeam Results Are In: Here’s What You Had to Say About Living With MS

In December 2014, we asked MyMSTeam members, like you, to participate in a survey about what...
Summary: In a recent survey of the MyMSTeam community, 85% of respondents said they’d want...

The Results Are In: 85% of the MyMSTeam Community Want Better Access to Clinical Trials for MS

Summary: In a recent survey of the MyMSTeam community, 85% of respondents said they’d want...

Recent articles

Being diagnosed with multiple sclerosis (MS) can complicate decisions about what supplements and...

Using Vitamins and Supplements Safely With MS: What To Avoid

Being diagnosed with multiple sclerosis (MS) can complicate decisions about what supplements and...
Red wine is sometimes called a “superfood” because of its antioxidants — substances that help...

Red Wine and MS: Potential Benefits and Risks

Red wine is sometimes called a “superfood” because of its antioxidants — substances that help...
Many people with multiple sclerosis (MS) switch treatments over time.Before switching MS...

5 Things To Know When Switching MS Treatments

Many people with multiple sclerosis (MS) switch treatments over time.Before switching MS...
Many people with multiple sclerosis (MS) are sensitive to heat. In fact, even a quarter- or...

Cooling Vests for MS: Benefits, Uses, and More

Many people with multiple sclerosis (MS) are sensitive to heat. In fact, even a quarter- or...
As many as 95 percent of people with multiple sclerosis (MS) experience fatigue. Measuring...

How Is MS Fatigue Measured?

As many as 95 percent of people with multiple sclerosis (MS) experience fatigue. Measuring...
Cognitive symptoms such as impaired attention and memory occur in many people with multiple...

Strategies for Enhancing Cognitive Abilities With Multiple Sclerosis

Cognitive symptoms such as impaired attention and memory occur in many people with multiple...
MyMSTeam My multiple sclerosis Team

Thank you for subscribing!

Become a member to get even more:

sign up for free

close