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A MyMSTeam Member asked a question 💭
Risingsun, OH

Several years ago before I was diagnosed with MS, the whole left side of my head "plugged up", lasted about 2 weeks and was like living in a tunnel for that amount of time. People talking, music, tv, telephone...sounded like being in a tunnel (best I can describe it). I finally went to an ENT, they never found out what was wrong, but said I had progressive hearing loss. Did CT Scan on nerve (ear), believed I had a tumor. Wanted me to come back and keep repeating same tests! I didn't go back… read more

March 31, 2015
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A MyMSTeam Member

@A MyMSTeam Member, sorry, I got cutoff above, so, in my opinion you may be having a MS relapse, and you'll have to ask your neurologist to do an MRI or just give you a course of IV steroids ( Solumedrol) to help speed up process of decreasing the inflammation going on in select nerves' myelin sheath. I also experienced fullness in my ears also, and heard like helicopter noises beating in my ears, this was due to my brain cells holding to, too much fluid in the brain. My neuro-opthamologist prescribed a duiretic that takes care of this ICH ( intracranial hypertension) and it has helped tremendously, the drug is called Diamox sequels extended release caps. The only drawback is, the drug is very expensive. So, if your neuro says nothing can be done, that's not true. You may need to get a second opinion, and if you do,bring the new neuro copies of any testing done all ready, so they won't have to repeat anything. I hope you start feeling better soon.

March 31, 2015
A MyMSTeam Member

Yes I hear ringing all the time

March 31, 2015
A MyMSTeam Member

Leon, I wish I could remember the site to send you. Will have to look it up again but I came across a site that takes place in San Diego. There are several doctors that will answer your questions. I have 2neurologists I go to, that both worked under him at Cleveland clinic in Ohio. He said Yes, you can have hearing issues with MS. He sent me to an article that explained it all. I'm sorry, I will look further for that site again. I printed off the article, too. My neuro said that was probably a relapse. I did see an ent, he could not find out why but I definitely had progressive hearing loss and that's why I have the terrible ear noises. This doctor started this ms site because he felt there are too few ms clinics, etc. I just looked and found it. It is healthcarejourney.com. His name is Revere Kimmel. Hopefully, you will figure out how it all works. Every question I ever asked was answered. He is the one that my 2 neuros worked under at Cleveland Clinic. They spoke very highly of him.

April 2, 2016
A MyMSTeam Member

@A MyMSTeam Member, Wow, thanks for sharing that link, that explains a lot in my case, because, I do have brainstem plaques, my neuro said they are approximately at C5-C6, I copy and pasted some of the article below:

Hearing loss is usually associated with other symptoms that suggest damage to the brainstem — the part of the nervous system that contains the nerves that help to control vision, hearing, balance and equilibrium.

Hearing deficits caused by MS are thought to be due to inflammation and/or scarring around the eighth cranial nerve (the auditory nerve) as it enters the brainstem, although plaques (abnormal areas that develop on nerves whose myelin has been destroyed) at other sites along the auditory pathways could also contribute to hearing problems.

April 5, 2015
A MyMSTeam Member

The first time this happened to me, the dr. I saw at an urgent clinic said he thought I SIGHED too much!! I have sounds similar to when leaving a hard rock concert as a teenager, a fuzzy, crackly sort of noise & it comes with vertigo at times. I take meclizine 25 mg 3x's/day for the vertigo & it helps quiet the noise, but I cannot make out what people on tv are saying. I have to use closed captioning to understand what's going on. Never had any of this til the 4th or 5th year into MS life.

March 31, 2015

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