I am SP. I used to be an avid cyclist, now I dread walking from the kitchen to the living room. I am just getting out of a very bad relationship (with a bad Neurologist) and I am hoping that my new will help. That is all we have left, right, hope? In my local support group the is a girl who was in a wheelchair and is now walking. She did it with P/T. At my fitter for my brace he slipped in that there were people he treated who were no longer affected? First I had ever heard of that. So, after years of ever diet you can imagine for MS with no luck, two failed treatments, I decided to take charge. Personally I am taking a four pronged approach. Understand I am just at the beginning of this. One is to get my mind in a better place by not letting my constant depression over this stupid disease drag me down. Two is to try something that I read in an article on an MS site that had been tried on Mice. Third is to get on a new Med because of that last neuro and their lousy office i have been on nothing for six months, and last is the P/T. I have started three of the four things and I am feeling better, but nowhere that I need to be, but better is not worse, right. The P/T seems to be working very well, getting the right muscles working better, not just a blind exercise. Always got to a P/T person who knows MS. I will keep you posted on any new improvements I have or do not have over time. I too am no longer working. It stinks.

Hello to all! I feel guilty that I don't get back to reply as often as I "should" whatever that means! Question for Gran, what is Imuran, haven't heard of it. To Cindynana: thank God for friends that get me out of the house, I have a friend with a beach house in old Orchard and my kids and I are going for 4 days this week and I can't wait to hang out and spend time together! My biggest worry is how I will get down to the beach, through the soft sand? Any ideas people? I am thinking about the small metal walker that I could just step along with picking up step by step, if that makes sense! And there is a Senior Center, though I am only 55, that does cool things all month, I just had a paint your own wine glass and wine tasting nite...it was a lot of fun, good people. My husband is always willing to drive me if I'm tired or friends but I still drive also. Staying active is important. I struggle with depression and when I cut myself off, it gets much worse!
That's all for today...it's a rainy gloomy day today, but the forecast is for sunshine for days following today!

Your attitude of "doing what you can" will benefit you. I also have SPMS but can fortunately still walk, usually with some assistance. Maybe physical therapy could get you back on your feet. Hugs!

dx'd SP a month ago...taking vitamins and supplements to aid my body in healing from the inside out and pushing myself to walk. Began with 4 blocks last week and up to 8 blocks this week. This is a B.I.G. battle we are in and I'm not willing to give in or up. I am willing to do all I can do to help my body be strong and overcome this mess. One thing I do know is that I am fearfully and wonderfully made therefore that excludes the mess! Have also been very active in changing what I consume after reading, 'The Wahls Protocol'. Terry Wahls had good success even coming out of her wheelchair. Try finding her book, it is a really good read for those of us with the dx SPMS.

Yes! I am also secondary progressive, am not ambulatory, and also try to stay active in my community, family, and church. I recently completed my Master's degree, and am beginning another on next week! I like to stay busy, obviously! I also am writing my first book. =)