I've had MS for over 50yrs and SPMS for 25yrs the only treatment I've had are steroid( intravenus ) the last one I had was about 15yrs ago. I take Gabapentin tablets also Baclofen and painkillers on a daily basis. I also have a perminant catheter fitted
Sorry I'm trying to get used to this app just my normal medicine
Yes, many of us have. ๐
I am so sorry
I have SPMS, diagnosed a couple years back. Now I get "relapses" that are not true relapses. All the symptoms (worse fatigue, worse pain, decreased function, etc) but no new lesions on the MRIs. After a bit, symptoms get better, but I never fully return to level of function I was at before the episode. Over time, just a steady overall decline that never gets any better. I am 61. So much for my golden years. ๐ฅด