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A MyMSTeam Member asked a question 💭
Charleston, SC

I feel that I was misdiagnosed because I haven't had the symptoms in years and I stopped taking the copaxone medication yes ago.

April 8, 2015 (edited)
 · 
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A MyMSTeam Member

How were you diagnosed? The lesions are pretty obvious on an MRI and doctors are usually pretty slow to call it MS. Most people go years without an official diagnosis. You may want to just consider yourself lucky. MS progresses differently for everyone. I have a friend that has had it for 20 years and can still run every day. If only...

April 9, 2015
A MyMSTeam Member

I have even tried an prescription anti-inflamatory. Unfortunately, didn't work for me. I take ibuprofen all the time for muscle aches and pains. I wish it would help with those lumps. They stay around too long. Wouldn't bother me if they didn't hurt or itch!

April 14, 2015
A MyMSTeam Member

I was first on rebif. It did affect my liver and therefore cannot take interferons. I then tried Gilenya and it lowered my white cells and I started having all my symptoms back. I am now on Copaxone. I have done the best on that. I don't like the lumps it leaves, but they do go away but is better than the alternative. Have had no other major side effects from it. My neuro loves it, as he says it does not "mess" with the immune system the way the others do.

April 12, 2015
A MyMSTeam Member

@A MyMSTeam Member that's good to know about copaxone. I thought all the drugs effect the liver. At least there is one I can go to if my liver numbers get too high.

April 10, 2015
A MyMSTeam Member

It was explained to me when first diagnosed, that MS is very unpredictable and that is why they "always" treat it. You can go a long time without a relapse and many times your symptoms will go away and then they may not. You just don't know. So, so me it like playing "russian roulette". Some choose not to treat. My cognitive problems were so bad after my last relapse I am a little afraid not to. It tok me 2 years to get back most of what I had lost. I still have issues. I guess you have to ask yourself if you are willing to take the chance. Sometimes the lesions shrink or disappear, but they will still treat for MS as they can resturn. Just sharing the things I have been told and learned from others and my doctors. God luck!

April 10, 2015

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