I was diagnosed 1/8/15, ppms on 3/9/15. I was diagnosed, probably misdiagnosis, chronic fatigue syndrome in 87, but later experienced problems getting downstairs and in general walking in morning in 93, then tremors in right hand around 94. The latter 2 stuck with me through the years, fatigue came & went off & on. Now it's an overall fatigue including muscle fatigue. I did experience approximately an 8 hour long malaise ( I guess that's what you'd call it ) when I was 13. I never told my parents that I couldn't even muster the energy to walk.

I was told it is a guessing game. Whenever your first symptom was, that's how far back it goes. I can remember my first one at about 18, I was dx'd in 2009, I am now 58............I guess it doesn't really matter if there isn't any cure for it, right?

I think I started having symptoms in my late 30s. They began with tingling in legs after walking about a quarter of a mile or so. I think I started having symptoms in my late 30s. They began with tingling in legs after walking about a quarter of a mile or so A few months later I started graduate school and was experiencing a great deal of fatigue, and sometimes after sitting at a desk for any length time I was unable to stand u A few months later I started graduate school and was experiencing a great deal of fatigue, and sometimes after sitting at a desk for. Of time I was unable to stand up. However, I wasn't diagnosed for another 15 years! By that time I was beyond R&R and moved directly to secondary progressive.

I got dx last year but been trying to figure out when mine started and so far I can think of symptoms related to MS that go back over 20 years, don't think they can actually tell us when our MS started especially since most doctors are still unsure exactly what MS is and what symptoms are fully related to it.

@A MyMSTeam Member recently I've been doing research about migraines with visual aura because a few yrs ago I had them excessively, sometimes 3 aura episodes a day. Well, epilepsy, ms and migraine (and other neurological diseases) start with glutamate making the brain hyper-excited. When I had tons of pain and spactiticy in 2008 I also started the mIgraines. It's interesting and might have some correlation and looking back at my symptoms back then, I'm sure the pain/nerve issues were ms.now, if only they could figure out why/how the glutamate is related then maybe we could have a cure or meds to help. Did you get the visual auras before a seizure?

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