i have been going through a pretty steady downhill progress for a few years..mind, hard to walk, fatigue, bladder,numb..it comes and stays.. never goes..only my hearing came back..still have ringing in ears 24\7...anways..now lately my eyes hurt and light is unbearable..i have to wear sunglasses in my house even..i dont even know if this is ms related ? do i need steroids or?
My neuro asks me about eye pain and sensitivity at every check up. I would call the doc.
@A MyMSTeam Member....I always do that. Before I make an appointment with any Doctor investigate them. Find out their credentials, talk to people about them and get as much information about them before I go. And when I do go to them I tell them I checked them out. They actually seem to appreciate the fact that I checked them out first.
@Fishhead....She was a neuro ophthalmologist at the University of Penn. I asked my neurologist specifically to send me to her. I did research on her before I even asked to go see her. I keep all my Doctors in one place, my oncologist both my neurologist and my ear nose and throat guy my urologist and now my neuro ophthalmologist. They are all on the same network and all under the same roof. In fact I feel like Norm from cheers because the Universtiy of Penn has 4 buildings and everyone there knows my name. I'm there so much I don't even pay for parking. I have three appointments next week a biopsy and a possible surgery followed by treatments in the future. So yeah they all know me. And trust me I research them first before I go see them. If I'm not happy with them I fire them. I fired one neurologist already.
@A MyMSTeam Member = I am APPALLED by your Neuros irreverence to your vision issues, as they ARE CONCERNING & need ADDRESSING. Please DO find a Neuro Ophthalmologist = YOUR VISION is too critical to let Dr. MORON disregard!
CoolLioness = your comment to KimShaffer is brilliant. I would have said MOST of what you said and concur with your statement of the New Neuro needing to be an MS Neuro. Kim be SURE to find that very thing out.
I would also suggest these things:
1. Take a written list of your TOP concerns and put them in the priority YOU feel needs to be addressed (AND write down the pertinent things the new Neuro tells YOU)
2. Take your top MS-supporter (partner/child/parent/friend) with you to appt with new Neuro (you may wish to ask them to be silent and help YOU hear what Neuro says=two sets of ears & brains better than one)
3. Be sure to get ALL info on any DMD's the new Neuro states as your options. The drug companies typically give the docs pamphlets/etc for that very reason (TRUST me, I used to do that, and KNOW that the drug rep is HIGHLY interested in getting YOU, the patient, ANY info you need on their drug). After you see new Neuro come back HERE and ask US about the DMD options you were given. I have found that 99% of the people here WANT to help other "MS'ers". (the other 1% are just looking for attention-ROFLMAO) WISHING YOU THE BEST!
I went to my appointment with the neuro optometrist yesterday. I explained how sensitive to light I was and if a bright light hits be just right I will lose vision in my left eye for sometimes 5 or 10 minutes. She did a complete eye exam. Told me my eyes look very healthy. She went onto say she had no explanation as to why this happens. I still believe this is an MS thing for I never happened before I had MS. But at least I know one thing on my body is healthy, my eyes.