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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Huntington, NY

I am starting tecfedira in two weeks, any tips or information would be greatly appreciated!

August 5, 2015
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Reactions
A MyMSTeam Member

Get your blood work done b4 you start to make sure u WBC is in normal range. And get tested every three months. After 7 months my WBC dropped lower than a person w HIV. Not even on the charts. Took 4 months to get back up. Neuro said its happening to a lot of his patients.

August 6, 2015
A MyMSTeam Member

@A MyMSTeam Member - Ampyra is the only drug that I take, and it has improved my walking tremendously.

August 7, 2015
A MyMSTeam Member

When I started,taken Tecfidera after being off ALL MS meds for 2monrhs and was in the middle of BAD EXCERBATION . It didn't take long to see improvement. Over time I have seen more improvement. . No Walker, no cane and able to walk further and further. I must mention I am also taking Amprya. ( I think I spelled that correctly) , Vitiam D and calcium . Good luck I think you will do well. My husband think this medicine has changed my life for the better.

August 7, 2015
A MyMSTeam Member

Thank you @A MyMSTeam Member ! I will do the same. It sounds like most people tolerate it well, hopefully, prayerfully we are one of them! : )

August 6, 2015
A MyMSTeam Member

I'm starting it on Monday 8-10-2015, I am somewhat apprehensive, but thankful that there is something that could help. I will appreciate advice also.

August 6, 2015

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