I can only tell you that my vision was bad and over time my body adapted- long time. A couple things here: Please, even in the face of horrible stress and the MS monster roaring away- STRESS MAKES EVERYTHING WORSE. Second- Breathe- deep and slow 5 times in -hold-expel Repeat this often. Next- Drink a glass of water-fresh and cool. Now, lets get to your problem. The best person to see is an Optic Neurologist- Not your regular neurologist. Do you know of one? Where do you live? Check with your local MS chapter to help you find one. I suggest this because your concern seems to be most about vision right now. It really helps to separate your problems and get the best help you can for each problem that is preventing you from doing what you need to do.

When it comes to Drs, remember you are the CEO of this team- they work for you- This is all about you! Do you feel that this Dr. is hearing your concerns? understanding them? If he is good- keep him(or her) if not get a new one. Are you comfortable waiting till your next appointment? If not call a different one. You will always be the strongest voice on your own team.

I am sorry I didn't read some of your details correctly -forgive me-

I have had Optic Neuritis several times- I do not (and will not ) take steroids and was not prescribed. What I found, My Neurologist and my optic neurologist confirm, is that my eye has created work arounds. Let me explain- I would describe my symptoms as having black ink splashed in dots over my visual field. At first I was scarred and my vision was not great. Over time, it went away. My docs know this because in addition to inspection of the optic nerve- my pupils are permanently dilated. Pupils dilate for several reasons but most often to compensate for darkness. So my pupils still see dark spots but I no longer do. My vision tests are good and my glasses now correct my vision. I am extremely sensitive to light and I wear transition lenses but otherwise I am good.

@A MyMSTeam Member The solumedrol didn't help me

@A MyMSTeam Member I do not have an MS neurologist because I have not yet been diagnosed with MS. I have all of the symptoms but not yet diagnosed...The brain & spine MRI both came back with no lesions which it could honestly be too soon because I have only been having symptoms for 2.5 months. Even the Dr said it could be too soon. I have also had extensive blood work done for lupus, lyme etc...My Neuro Opthamologist sent me for the LP because my regular neurologist had not. I am waiting on the results as we speak. I too have sun and light sensitivity and can not see at night to drive...It is so annoying! I feel helpless...& today I am so off balance and just so tired!

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