Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question πŸ’­
Lovettsville, VA

Does anyone else just have ms of the brain nothing in spine

October 4, 2015
 · 
Be the first to react
A MyMSTeam Member

Hi - My wife has lesions only on brain - she had relapses in 2003 2009 2015 used to take prednycelone only - but now started Gilenya fingolimod 0.5mg 1 per day n 50mg oral prednycelone (along with vitamin pills). Neuro asked us to use for few months

October 6, 2015
A MyMSTeam Member

I only have lesions on my brain as well.

October 4, 2015
A MyMSTeam Member

I only have MS in my brain .. Spinal tap shows high protein levels only.. But I can't find a neuro who takes Fl Medicaid so unfortunately they have not even gave me a final DX which is worse cause my symptoms are getting worse and worse mostly my memory and my moods, depression and anxiety horrible !!!! Still I am looking for a neurologist in south Florida ... πŸ˜’

October 5, 2015
A MyMSTeam Member

Hi @A MyMSTeam Member, I hope that you are doing well today. My neurologist immediately put my on Avonex when he got my first MRI back. This was before I had a clinical diagnosis (two separate exacerbations). He was very assertive and put me on a course of IV Solumedrol with an oral Prednisone taper even though my bout with double vision and crossed eyes had passed. Yes I said crossed eyes (yuck) which meant brain stem lesion. Talk about being scared, I was 32 years old with 3 kids. Luckily I had a very supportive husband and good therapist that helped me get past the initial shock. I am now 51 yrs. old and to ease your mind a little bit, I'm doing ok. :-)

October 5, 2015
A MyMSTeam Member

I only have lesions in my brain as well.

October 4, 2015

Related Questions

View All
MyMSTeam asked a question πŸ’­
San Francisco, CA

MyMSTeam asked a question πŸ’­
San Francisco, CA

A MyMSTeam Member asked a question πŸ’­
Nogales, AZ