Just because The MS neuro whoever has stopped using PRMS it didn't go away. Trust me. I never have a "good day". I have never had a "relapse". That confused me from the beginning. Whats a relapse if I am always feeling this way?

I was DX with bilateral internuclear ophthalmoplegia and PRMS within a year. That fast life changed. From a licensed builder to a POS! Awesome disease. My doctor is very much on top of MS that's all she does. She still uses PRMS. So I think it is up to the Neuro to DX you and Pluto is still a planet. It is all words, but I can tell you MY PRMS is completely different than RRMS. It came on FAST and is taking over even faster. On Gilenya now. So far nothing is helping.

@A MyMSTeam Member is anything helping you?

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A MyMSTea...

Not sure, but I don't think so.

And if you understand what they are saying, the reality is that the distinction between relapsing remitting and secondary progressive are what they are talking about when they are referring to a continuum. It is often hard to distinguish when these occur and because this covers 85% of MS patients it is easy for you to not understand their track of thinking. For those of us who are primary progressive and NEVER have experienced a relapse, we are in a completely different boat. None of the medication on the market applies to us. Few PPMS and especially PRMS patients are even included in trial studies as there simply are not enough numbers of these types to even take a serious look. The only possible treatment for me up to this point has been solu-medrol infusions every three months but the first attempt landed me in the hospital with a serious side effect rarely seen - pancreatitis. The diagnosis pending for me is I may have moved to PRMS (certainly not a continuum occurrence) highlighted by my first ever potential relapse or aggressive attack. If you amend your comment to RRMS and SPMS, I agree. My doctors long ago told me there is little distinction between these groups both in diagnosis and treatments available. You probably fall into one of these groups and explains why you think the way you do. No bubble burst on my end.

that matches nothing at all that I am being told. My PPMS is nothing like the RRMS that so many others have, and I recently have moved to PRMS distinctly different than all the rest. The "they" you are talking about clearly is none of the "guru's" of MS that I have dealt with. Sorry to burst your bubble.

Not sure