Does anyone take Gilenya? Do you have bad side effects? Do you think it's helping you?
My daughter took it for 9 months no major side effects but developed three new active lesion. Developed seizes after 6 months on it but not sure if it was the medication or lesions so she was taken off it. She is off to the infusion clinic for 5 treatment of a new IV drug Lemtrada on Jan 11 2016. It Depletes the immune system and then rebuild it. I hope this works. Because she will be put thru a lot.
I have for the last 3 years. No bad side effects. Haven't had any bad relapses.
Yes, I have been on Gilenya. It definitely helps. I have had no side effects wit the exception of mildly raised liver enzymes. They really can't say Gilenya is the cause. Are you still in RRMS? Snice I have progressed into SPMS not sure how effective it is. It may work best for RRMS.
Michael1974. I have taken Gelenya 4.5 yr. good outcomes & no bad side effects. Be sure to fallow label directions to have 6 HR. Professional monitor at first dose. My heart rate went down to 50 beets/min. No lower. No problems. Best wishes!! @Timbofrog
I was wanting to hear from anyone on Gylenia. I have read a couple of responses, but would like to hear more.
Has anyone been diagnosed with leukopenia while taking gilenya?
Time to swithch daily maintenance MS medication. My Neurologist is asking for my input. How do I know what to choose?