Connect with others who understand.

sign up log in
Resources
About MyMSTeam

Connect with others who understand.

sign up log in
Resources
About MyMSTeam
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Gilenya

Gilenya

Does anyone take Gilenya? Do you have bad side effects? Do you think it's helping you?

A MyMSTeam Member said:

I have been taking for 1 year. My MS symptons have improved a lot compared to when I was om Copaxone. Liver function/cholerstorol affected a bit on blood tests but not noticeable to me. I have had no relapses since being on gilenya

posted over 6 years ago
A MyMSTeam Member said:

My daughter took it for 9 months no major side effects but developed three new active lesion. Developed seizes after 6 months on it but not sure if it was the medication or lesions so she was taken off it. She is off to the infusion clinic for 5 treatment of a new IV drug Lemtrada on Jan 11 2016. It Depletes the immune system and then rebuild it. I hope this works. Because she will be put thru a lot.

posted over 6 years ago
A MyMSTeam Member said:

I have for the last 3 years. No bad side effects. Haven't had any bad relapses.

posted over 6 years ago
A MyMSTeam Member said:

Yes, I have been on Gilenya. It definitely helps. I have had no side effects wit the exception of mildly raised liver enzymes. They really can't say Gilenya is the cause. Are you still in RRMS? Snice I have progressed into SPMS not sure how effective it is. It may work best for RRMS.

posted over 6 years ago
A MyMSTeam Member said:

Michael1974. I have taken Gelenya 4.5 yr. good outcomes & no bad side effects. Be sure to fallow label directions to have 6 HR. Professional monitor at first dose. My heart rate went down to 50 beets/min. No lower. No problems. Best wishes!! @Timbofrog

posted over 6 years ago
Already a Member? Log in