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January 15, 2016
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A MyMSTeam Member

Wow. Your experience with crappy veins sounds awful. I'm so happy you found a solution that works.

January 18, 2016
A MyMSTeam Member

I fought for over a year (refusing to give any blood at all for testing) till one of my 6 specialists gave in and approved day surgery to have a port-a-cath.

Port-a-cath is under the skin entirely as compared to PICC lines. It is like being punched in the chest when the Huber needle is forced into the chamber rather than many stabs, bruising and vein and/or nerve damage from repeated vein access.

I have to go minimum monthly to have it flushed (and get my blood work draw) at an infusion (chemo) clinic in the hospital, there is the risk of blood clots and infections - but for me the benefits are better than the tortures of before.

I have noodles for veins that collapse, dry up, bruise up terribly, low blood pressure and disappear whenever the word needle is said. My personal record is 3 hours, 31 butterflies, 5 nurses, with every trick they have, using all: inner elbows, wrists, back of hands, and my feet.

They used to put people out under general anesthesia to install them, but now the ports are smaller so a local is all that is required.

Suggest that if you go this route to use all features of the port and have it stiched to tissues so that it can not flip over or move.
They are good for a person's lifetime now, and rarely need to be replaced.

Write me back if you want more information or pictures.

January 18, 2016

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