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A MyMSTeam Member asked a question 💭
Winter Springs, FL

I've been on Tecfidera for just about 2 years and over the last 9 months I've noticed my hair was slowly thinning, breaking, .and especially when washing I would loose a good amount of hair. I would document seeing if stress was the culprit, anything to help me understand and I would take pictures so when I went to my Neurologist I could let them know this is not normal!!! Well, they are telling me it's not the Tecfidera, and to take Biotin as it's very good for hair and nails. But I'm not… read more

February 7, 2016 (edited)
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A MyMSTeam Member

I have been on Tecfidera about 18 months, and yes, my hair was getting very thin. It was already thinning while I was on Rebif but seemed to get worse on the Tecfidera. I was taking biotin, 5000mcg, and didn't notice a difference but then doubled the dose to10,000, sublingual and my hair seems to be making a comeback! My friend that does my hair really noticed the difference. I don't know that the biotin is the key, but I will continue to take it. Good luck. :)

February 7, 2016
A MyMSTeam Member

I on Tysabri 3 years noticed I had more hair in my brush hair was shoulder length went short now not so much

February 7, 2016
A MyMSTeam Member

It's a side effect of the tecifidera. Look on the Internet there are blogs about it. The kicker is that most of our meds have this side effect.

February 7, 2016
A MyMSTeam Member

My nureo told me about a 3 step shampoo system, nioxin. It's pricey but it helped. Also have your hormone levels checked. That can cause hair loss as well.

February 7, 2016
A MyMSTeam Member

@ Tip-o-Knee

What's the Biotin mcg do you take now?

February 11, 2016

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