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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
March 28, 2016
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A MyMSTeam Member

I also had 0. I have since read that only about 5% of those diagnosed as PPMS have 0, making us an even smaller group within a small group. There is speculation that we should have yet another designation, and that we are possibly not even MS as it is commonly known. Very frustrating, as if it wasn't frustrating enough already.

March 29, 2016
A MyMSTeam Member

I had 14 bands but will never do a lumbar puncture again.... That was the worst 3 weeks of all time.

March 28, 2016
A MyMSTeam Member

I have 2.87 unique bands from CSF. NONE in serum. No diagnosis yet. I go back in six months for another MRI SCAN.

September 21, 2017
A MyMSTeam Member

I agree! Been so frustrated the last six months, crappy docs and being told all I needed was anti depressants

March 29, 2016
A MyMSTeam Member

Thank you, I have had to switch neros and think we are now on the same page

March 28, 2016

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