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A MyMSTeam Member asked a question πŸ’­
Charlotte, NC

I am having issues I have lupus and Ms, now I am on Nitro and I have had a heart attack. My body is so stressed and I am in relapse again, has anyone had anything like this happen to them? I spoke to my doctor and now I am going to have to have Solu- medrol through Iv for five days, but have to catch, take nitro, just really tired. I have a wheelchair just don't want to use it because of my kids. I am trying to fight, but getting tired. Any advice?

March 28, 2016
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A MyMSTeam Member

To believe in yourself, keep your faith in God/or whatever name you use for God of your faith. Gather a good support system, have and keep faith in your neurologist and by all means do not base your life on the life of someone else with MS. MS is an unpredictable, invasive, intolerable, sometime hilarious, mood swinging, life changing and attitude strengthening disease. It affects each person differently. I want to let everyone newly diagnosed know that living, loving and laughing is just as much a part of MS as it was before they knew they had MS !!!
In addition to that I consider MS to be a Signature disease, since it effects everyone differently.
I have Lupus, MS, Congestive Heart Failure, Ischemia of the heart and Mitro-valve Prolapse, TIA's and had two heart attacks not long after I was dx'd. In addition to the above listed dx's I have 3 more autoimmune diseases and have kidney issues. I became a steroid induced diabetic after years of salumedrol. I understand your concern, however STEROIDS nearly killed me because of the heart issues. I use H.P. Acthar Gel for my relapses. You may want to ask your neuro about Acthar Gel. It is expensive $33,000.00 for 5 injections, but most insurance will approve it and if not your neuro should have some in their office for emergencies. I am not a doctor, but this medication saved my life.

March 29, 2016
A MyMSTeam Member

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April 25, 2016
A MyMSTeam Member

All I can say is I'm Ganna pray for you cause,prayer is strength.

April 10, 2016
A MyMSTeam Member

So true, have to smile and laugh.

April 8, 2016
A MyMSTeam Member

I've named my wheelchair my escalade just to lighten up the situation . Got to smile

March 30, 2016

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