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A MyMSTeam Member asked a question 💭
Naples, FL

I have been on Tedfidera for about 2 yrs...dr just told me my LYPHALYTLES (sp is terrible) are getting a bit low...3 mts ago they were 719 and just got them tested again is they were 500..he said if they get lower I will have to be taken off it....sucks cuz it working so well for me...any one hear of this?

April 3, 2016
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A MyMSTeam Member

Yes, this unfortunately is a known side affect. My neuro does blood work every three months, they (lymphocytes ) are dropping , I imagine I will need to switch too as I'm also pos for JC virus. I love this drug because of all of the positive impact it's had on my life......I hate this drug...because eventually, it may harm my body.....LOL! Classic MS saga!!

Hugs to you, hope your path is direct ( ie; not too ambiguous!;-) )

April 4, 2016
A MyMSTeam Member

I recently was taken off Tecfidera as my lymphocytes went down to500. At that point I was down to half of the prescribed doses day. My neurologist did not want to risk it asi test positive for the JC virus.

April 3, 2016
A MyMSTeam Member

Yes, mine did the same. Only take one dose a day. Back to mormal. Hope this helps

April 3, 2016
A MyMSTeam Member

I have my appointment with dr next week...hope my blood work is better..much higher....hate to start another med right now...going on vacation next mt and hate to have new ill effects while there

May 28, 2016
A MyMSTeam Member

Sorry, I also wanted to add that I had only been on the drug for six months and my liver also didn't like it. Hopefully your lymphocytes will increase and you can stay on the drug.

April 3, 2016

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