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A MyMSTeam Member asked a question ๐Ÿ’ญ
Colchester, UK

After having another appointment at Queens Square on Tuesday my neurologist wants me to go back on baclofen for my spasticity and also low dose steroids continually. I didn't think it was safe to be on them for long term. I terrified of putting on more weight. Does anyone find the benefit from them?

May 19, 2016
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A MyMSTeam Member

Hi Tilly i refuse both which you were offered i personally didnt like the long term effects, i take organic apple cidar vinegar not very nice tasting but ive found alot of difference with the leg spasms at night, good luck๐Ÿ˜Š๐Ÿ˜Š๐Ÿ˜Š

May 19, 2016
A MyMSTeam Member

Just face it, we are all just Guinea pigs for new medicine. That's the only way to find out what will happen to us. Look at how much sugar and processed foods you are eating. That helps everyone to some extent and with no side effects at all.

May 20, 2016
A MyMSTeam Member

@A MyMSTeam Member. No I'm not taking any other pain drug. Gabapentin made me gain so much weight. That's what I'm worried about with the steroids. X

May 20, 2016
A MyMSTeam Member

I take Tecfidora, but also augment it with a multiple collection of supplements.

May 20, 2016
A MyMSTeam Member

@Aldasia, I'm not sure what I'm being put on yet as he's writing to my doctor to get it prescribed. I've got to go back and see him after three months. X

May 20, 2016

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A MyMSTeam Member asked a question ๐Ÿ’ญ
glbran@comcast.net

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