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A MyMSTeam Member asked a question 💭
Princeton, IN

I would like to know how others feel while taking Gilenya? Any problems while on Gilenya?

July 26, 2016
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A MyMSTeam Member

I also take gilenya. No needles one pill a day. Thank God something finally worked for me. I have had Ms for 11 years and I have tried pretty much every drug out there and gilenya has worked best for me by far.

July 27, 2016
A MyMSTeam Member

Hi Donna, in answer to your question, I have had no headaches at all since starting. The first few days I felt a little tiny bit of eye pressure, but that went away after 3 or 4 days. I've been really happy so far with everything, I hadn't realised how much the itching from the copaxone shots was getting me down until I switched. I take my tablet at 10am, and set an alarm on my phone, as it's easier to forget a tablet than an injection! I have not had any unusual fatigue, in fact I've had more energy since starting. Good luck!

July 27, 2016
A MyMSTeam Member

@A MyMSTeam Member

It took about 6 months before I didn't notice anything. Don't get me wrong, it wasn't bad. A bit of insomnia and some stomach/digestion issues for that 1st 6 months. I get bloods taken every 3 months and I'm presuming that that's all OK as I've never heard anything, they said I wouldn't hear anything unless there was something to tell.
It's always going to be hard knowing exactly what it's doing for you as improvements could just be down to being in remission but I'm pretty confident it's played a MASSIVE part in the improvement I've made in 2016, I see it as having saved my life tbh, up until taking it my health was just going in the opposite direction.

July 27, 2016
A MyMSTeam Member

I have been on Gilenya for a month. So far so good! The inital dosage was fine for me, no problems. So far this month I have felt the best I have done for at least 8 months, so I am very happy with it. I know it's early days though, and I was very nervous before I started it. Good luck to you.

July 26, 2016
A MyMSTeam Member

So who's with me on this? Frustration level when people don't get us whenever?i try to do my best and give GOD the rest but sometimes it's all too much! Trying to plan some time off with hubs,you know the drill

August 30, 2016

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