I was diagnosed with RR MS "officially" in January of this year. It was suspected last July but officially in January. I'm now in the throws of treatments; you know, Tysabri, Amatadine, Baclofen, yadda yadda. In a way, I guess I'm lucky; my problem is "only" weakness on the right side and balance problems. Even the word "lucky" makes my stomach turn. I'm having the hardest time with the emotional side of this. Every step I take (since my right leg drags, and I trip and stumble at least… read more
Hi @A MyMSTeam Member, maybe not the same, but I've got to believe that while yes, there are different days ahead; different doesn't always mean worse. You know? It's just different. I read a book on MS and the a quote that I read was "improvise and overcome." I have always been opposed to tattoos (I always thought they were for others and not for me) but I'm honestly thinking that is my new motto. And I might get it permanently put on my body as a constant reminder to "improvise and overcome."
Yes, I'm angry. Yes, I'm pissed. But maybe we can channel our anger into something. What? I don't know yet. But you and I are strong, smart women, and we can figure it out. {{hugs}}
But I'm still mad as a angry hornet.
I used to run, hike, backpack, whitewater raft and kayak, bike for 30-40 miles, now those things are memories from a previous life. Ms has weakened me and been a bitter pill to swallow, but it has also made me tougher, more determined than ever. As long as I keep fighting, keep moving forward, I'm at peace. Took me several years to realize this. You can and will learn to adapt to this, frustration and fear and not understanding is common with all of us and is ok. Better days are ahead for you, best wishes
Nothing wrong in feeling the way you do! It's normal for most of us. I know exactly where you are. I've had MS now for 33 years clinically diagnosed for 26. I've had a good 30 years with MS (good meaning mobile) It's a really long story from someone who has had it for so long but I encourage you to enjoy your live and be positive. Power of positive thinking goes a long way. Maybe talk to a professional about the way you are feeling/thinking. You don't want to battle depression and although many people battle depression, we with having a chronic illness are more apt to
Please know you are not alone. The bulk of the people on here have been where you are. If you have any questions or wish to communicate further my gmail is (Email address can only be seen by the question and answer creators)
I used to backpack the Applachian Trail. that has been stolen from me. There are no better days ahead. I used to chochet. that has been stolen from me. there are no better days ahead.
FINALLY, someone who feels like I do!!! Angry! Depressed! Disgusted! Don't want to get out of Bed! Want to scream at people who say "get on with life, it will be okay!" I haven't been too church and I never missed a service because I am too tired to comb my hair and I am afraid I might fall. I wouldn't because my husband is there but what if I have to go to the bathroom? Hold on to the wall the entire way? What if my hand starts shaking? I will feel stupid. My lesions are in my brain and makes stupid words come out when I am talking instead of words I am thinking, so what if I say somthing insulting? And I am supposed to just live with this??? No, I am angry!!!!!!!! And "take a walk when you are angry"-----I don't dare go anywhere alone, I might fall and I can't get up without help!! Yes, I am still in shock and I am angry!