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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Columbia, TN

Does anyone deal with the crawlies? Feeling like something is crawling on you and you're looking right at it and there's nothing there. Sometimes itching and pain too like I've been bitten but nothing.

What do you take for it?..especially the crawling sensation.

August 23, 2016
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A MyMSTeam Member

I had the feeling of bugs in my hair. I had a mser suggest using saline water on my hair. It worked...

August 24, 2016
A MyMSTeam Member

I take gabapentin too for the nerve endings that feel like you described. I am up to six a day (400 mgs) and finally things have settled down, but ran out for a few days (while we were camping) and it started again. Talk to your doctor things might settle down with it :) Good luck

August 24, 2016
A MyMSTeam Member

I started to take gabapentin because of the crawlies, it helped. I still get them just not as bad, I don't want to up the dose so I live with it.

August 24, 2016
A MyMSTeam Member

I had severe itching years ago. It was abnormal skin sensation as the myelin of the upper motor neurons going to those areas was being damaged. I don't have that anymore, but now have significant numbness. I have extensive lesions throughout my spinal cord.

August 24, 2016
A MyMSTeam Member

I get itching all the time

August 23, 2016

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