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What tests and how long did everyone wait to get "officially" diagnosed with MS? I have been in testing nearly 2 years. I have had 4 different Dr's say they belief it is and one is even the neurologist. I have seen- Neurology, oncology, rheumatology, cardiology... had brain MRI and spinal tap, 100's upon 100's of blood tests, bone density scan and a list of other test including a bone marrow biopsy. I was takin off of working and lost my insurance. That's when the testing stopped. They say they… read more

September 1, 2016
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A MyMSTeam Member

http://www.radiologyassistant.nl/en/p4556dea65d...
This gives examples of where lesions typical of ms form in the brain. If you get your report, it will give you some ideas where your lesions are located to compare which are typical and which are non-specific to ms. My brain lesions are non-specific, which is why my neurologist didn't use the brain MRIs to conclude ms, but rather he used history in absence of flares and spinal MRIs. History is not just symptoms, but also test results. For me that included a positive ebv titer and a more current deficiency in vitamin D. Did you had what your neurologist considers a flare?

September 2, 2016
A MyMSTeam Member

Oh D3 and B12 are common deficiencies. I don't think iron is relevant.

September 2, 2016
A MyMSTeam Member

D3 and B12 vital.

September 9, 2016
A MyMSTeam Member

It took 40 years for me to be diagnosed with MS. I was 63 years old when a neurologist who sets up all the clinical trials for the state of Nevada diagnosed me from a MRI I had 3 years before.The neurologist at the time said lessons were from old age.

September 9, 2016
A MyMSTeam Member

Common tale I'm afraid. I'm thrilled you were finally dxd.

September 8, 2016

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