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A MyMSTeam Member asked a question 💭
Moultrie, GA

Anyone experience lower leg pain, burning tingling in feet with numbness and toes hurting worse than feet and legs.

October 14, 2016
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Answer Summary

Members responded with strong solidarity to a question about lower leg pain, burning, tingling, and toe numbness, with many sharing that they... Read more

Members responded with strong solidarity to a question about lower leg pain, burning, tingling, and toe numbness, with many sharing that they experience the same symptoms daily, often worst at night. Several members mentioned medications that have brought some relief, including Gabapentin, Baclofen, and Pregabalin (Lyrica), though some noted the relief is temporary or comes with difficult side effects like depression and withdrawal. A recurring theme was the frustration of not finding lasting relief, with members encouraging each other to bring these concerns to their doctors and to share any new advice they receive.

A MyMSTeam Member

My MS nurse practitioner that came to my home gave me some advice on this. I take baclofen and she told me to eat a lot of protein. I have found that beer battered fish help my legs with the baclofen.
I eat fish a lot to help. I only take one baclofen or none. Depends on how my legs feel.

October 19, 2016
A MyMSTeam Member

Hello Adrienne,
Hope you are well today.
I get this all the time too; numb toes especially. My consultant prescribed Pregabalin (Lyrica) which has helped, but it is a pretty powerful medicine, it took a bit of getting used to. It might be worth asking on your next clinic visit if it might be helpful to you.
Love,
L

November 8, 2016
A MyMSTeam Member

it about killed me before figured out what was causing it. of course dr said wasn't that medicine but i came back to my sanity after stoped. i wasn't living just existing

November 10, 2016
A MyMSTeam Member

Hello I to took lyrica and it helped with pain for awhile then it went to depression. I took it for three years and getting off of it was horrible. It took a year for the withdrawl. The stabbing in the head was unbelievable. Be careful.

November 8, 2016
A MyMSTeam Member

I don't drink beer or any other alcohol. I just eat the fish sticks. It's something in the beer battered that seems to help me. I know the fish is protein. Try eating it during a week and try it.

October 24, 2016

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