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As someone with MS who is about to embark on a Masters degree with an interest in epidemiology, health and environment/ public health, I can't help but feel a pull to researching a facet of MS. Does anyone have any topic ideas that they wish more time and effort was put into researching?
Hi There,
Yes I do have questions that you could consider. I don't mean to sound negative but I tire of hearing the sales pitch's like Walk for a Cure. A cure will never be found unless they find the CAUSE.
So, 1- What's the cause?
2- Why are there different types IE PPMS, SPMS, RRMS or RPMS?
3- CCSVI is found in most MS patients including 40+ other neurological disorders including Parkinsons, ALS etc. What causes CCSVI?
4- Are there environmental factors in the main framework.
5- Improper food intake Natural vs processed.
Good Luck in your studies.
Hello Lizzie
One thing that is unrelated to CCSVI is diet alterations. I recommend this to anyone reading to obtain and read the book The Wahls Protocol. It is about fighting on the cellular level. Dr. Terry Wahls is the inspiration to many and is a victim of SPMS. Very good read. She is also on YouTube.
@A MyMSTeam Member, I do wish you well in continuing your education! ... As long as your interest in epidemiology continues .... it is a subject that does need more study. Good Luck!! Let us know what areas you are led to more.
Well my friend I agree with all. Spent hours looking up diferent phasis and treatment vs natural..and do what ever makes you feel good. Not all these meds (research stuff) are good. My Doctor told me about a patient who tried the drug they give for chemo. Her patient is now in a wheel chair. just food for thought! A cure um NO..sorry..Thanks for the share @A MyMSTeam Member
eHey Lizzie,
I have PPMS, dxed in 2008. 2009 was a downfall year for me and I ended up on a cane. In 2010 I was picked as one of 10 participants for a clinical trial for CCSVI in Mexico at Clinics of the Heart. I went and had the angioplasty. I went down on a cane and walked back. The Liberation treatment worked wonders for me. I am still walking (cane free) 6 years later. I do have symptoms that are returning. For ME it is like taking a med for a headache, You still have a chance of another..
My friend who is in a power chair had the treatment as well. Over the last 6 years he is now standing and walking with a walker. I ,again, don't mean to sound negative but I don't really believe when people say they had NO results. There was a great amount of expectation when this treatment came forth but it so depends on various factors, IE Severity, Longevity, Pre-existing illness and medications and more.
Let's look at some truths about this treatment. The Liberation Treatment is a Vascular correction for a Vascular condition called CCSVI or Chronic Cerebrospinal Venous Insufficiency. The correction restores blood flow to the heart. Liberation Treatment is about the liberation of restricted blood flow. The result to the returned blood flow is threw natural healing and relief of symptoms of MS. Through my research I have found that aftercare is in great need. There is no quick fix, it takes time and learning. More to the point you need to learn effectively to yourself. As for CCSVI being unproven? It is listed in the Oxford Textbook for Vascular Surgery. If there is anything I have found as a obstacle to getting better is ignorance and greed.
There are many links available and I will post them for you.
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