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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

denial social security disability

A MyMSTeam Member asked a question 💭
Port Saint Lucie, FL

I had to stop teaching after 23 years as of this past June due to the the chronic pain, chronic fatique, and the cognitive isdues that I was experiencing due to MS. I went to a disability lawyer. I was denied twce by social security. Do now my lawyer applied for s hearing. I received a letter from my lawyer ststing thst it will take 18-24 MONTHS JUST TO GET SCHEDULED!!! On top of thst, I have to have a 3 month advance notification as to when I am scheduled! I live in Port St. Lucie… read more

December 15, 2016
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Answer Summary

Members navigating Social Security Disability Insurance (SSDI) denials for MS shared that long wait times and multiple denials are... Read more

Members navigating Social Security Disability Insurance (SSDI) denials for MS shared that long wait times and multiple denials are unfortunately common, but several strategies can help move the process forward. Several members recommended contacting a U.S. senator or congressman to inquire about the case, as political involvement can sometimes prompt judges to schedule hearings sooner, and others emphasized the importance of having a neurologist write a detailed narrative about symptoms and limitations. A recurring theme was the emotional and financial toll of the waiting process, with members encouraging one another to stay the course, explore local financial assistance resources like calling 211, and remember that SSDI back pay is calculated from the original application date.

A MyMSTeam Member

@A MyMSTeam Member. What Coolioness said is sooo true! Only YOU know what you go through daily and what you can handle from day to day.

December 19, 2016
A MyMSTeam Member

A lot depends on your attorney.

Also, your neurologist's report is of utmost importance. Have he/she write a narrative about how bad your symptoms are and how disabled you are.

My neurologist was so angry when I was denied that she dictated a report while I was sitting there with her. Then my case went right through.

Also, some of it has to do with state funding for the review of disability cases. They have heavy caseloads. The ratio of examiners to cases it all comes down to money

December 15, 2016
A MyMSTeam Member

@A MyMSTeam Member. Wow... How were you able to get it so quickly? I have some of the same symptoms you do and others....

April 10, 2017
A MyMSTeam Member

I was on disability from my job for i think 6 months getting disability from my job and fmla after all that time expired i went on ss disability ( regular disability.) Had a laywer and passed the exact same day my work.disability ended thank god!! I would have potentially lost it all

April 9, 2017
A MyMSTeam Member

Contact your US senator from your area. There is no reason someone should have to be put through this crap! I contacted mine when I started looking into it and told him about all the issues of having to go through to get something that you paid into. He actually responded with a letter and a request for medical records so that he could help. Worth a shot

February 16, 2017

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