I've been hearing loads from people advocating stem cell treatment and "cures" or "no symptoms" "symptoms disappeared" & I'm interested to know how this is explained as the damage to the brain via the lesions, how does this suddenly repair?
I have white & black spots - black being cell death. Last I was aware cells do not change after they are black.
How does someone who has all these symptoms cease to have any? I thought the medication was to slow down disease progression from when taking… read more
I'm always a little skeptical when people claim that a treatment "cured" their MS. Or treatments that have a handful of patients boasting they are now completely symptom free and here is why:
Everyone's disease is different, some people can have several years pass between relapses. So just because 5 people say that a treatment made them "disease free" for 4 years, doesnt really mean that. What if their MS was going to be "guiet" for 4 years anyway?
Remember that some lesions do go away, some never turn into black holes but rather stay "white" forever and...a large majority of brain lesions never cause symptoms. So black holes can exist and a person still not have obvious symptoms. A large amount of brain tissue is "non-elegant" meaning it is supportive, not providing a vital function hence is you "lose" it you wont even know. (Not the same for the spine or brainstem however).
Also, some lesions specifically in spine, brainstem can cause major symptoms while at the same time being very small in size. MRI isnt perfect and can sometimes miss these.
Because of that, symptoms alone are not the only measure of disease activity nor is MRI alone. A person can have 5 new brain lesions without having new symptoms at all. Your neurologist needs both pieces of information to make a determination about response to treatment/degree of activity of disease.
Regardless, be wary of someone or a small group of people claiming a cure from a certain treatment/diet etc because MS is naturally very variable. In a disease like this, it takes a large, controlled trial to be able to demonstrate a true possible association.
My understanding is Broca's Area is the go to place for speech articulation & production in the brain, it is not too far away from the somatosensory cortex, which senses temperature & it sits in between Broca's Area & Wernicke's Area - the other area for understanding written & spoken language. Interesting stuff our brains - how they work when they do & don't. I can remember my doctor years ago asking did I make many random decisions as I had a lot of spots in the prefrontal cortex (cerebral cortex) & I always thought that was just part of my personality :)
Yes, you can share. I just wish I knew why the cold helps my speech. I'm not wearing a hat when it helps. The bad part is that cold can make my hands numb until they warm up and extreme cold makes me shake so I need gloves and a scarf. @ TullyJ
Wow, that is really interesting - Do you mind if I share this on my psychology forum? I am still on my University forum for psychologists & students etc & I wonder why the temperature may have affected your speech. Goes to show how incredible our brain is.
Milk shakes for brain freeze? What does brain freeze do for you?
I notice when I'm out in the freezing cold without a proper hat my speech comes back. That is so strange to me but I have been testing that out off and on. Once I warm up my speech goes back to normal so then I started plugging up one ear. After a while I got tired of that because I don't hear as well like that. I've noticed though that my speech is way better than it was.