Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Troy, MI

Okay Warriors...

What should I do next?? Was on Rebif 17 years stable. Walking has deteriorated over the years, use cane or rollator. Diagnosed in 98. Sick of injections and switched to Aubgio.

12/26/16. Now I am sick of the random uncontrollable diarrhea. So I think enough is enough. Taken meds to help control it, but doesn't work all the time. So what should I do next, go back to Rebif
stay Aubgio longer, try Gileyna even thou PML risk.
Or do I try Ocrevus since doctor thinks it… read more

March 31, 2017
 · 
Reactions
A MyMSTeam Member

@A MyMSTeam Member that's my point, you don't want to not treat aggressive and then you are SPMS with no treatment options. Tysabri really stopped mine and it's aggressive and Ocrevus will be next for me.

April 1, 2017
A MyMSTeam Member

Hi, I have been diagnosed with this Challenge 25 years ago but the feel I have had it most of my life. So I have been on lots of drugs. But what I am on now is Tecfidera (1 pill twice a day) and I have been on this about 5 years with no problems. Drug company is covering the cost.

April 1, 2017
A MyMSTeam Member

Hello! Hello! I was on Copaxone for 13 years. MInor progression of MS. Went on Tecfidera two years ago. No new lesions.. NO NEW LESIONS... But my recent blood test came back that I am now JCVirus positive. My neurologist is keeping me on Tecfidera for the present time. I was told that another Rx was to be FDA approved and I will bet that it is the latest, Ocrevus. There are many medications available to us. Ask your doctor for his/her recommendations too. Best wishes to all!!!

April 1, 2017
A MyMSTeam Member

@A MyMSTeam Member. I can drive myself to and from the infusions. With the extended study I get MRI's before each Infusion session. When I had my last MRI there were no new lesions, which wasn't the case when I was on Tecfidera. I think the worst thing about the Infusion is the bruise I get at the sites of where the IV is placed... I bruise easily ... always have, always will

March 31, 2017
A MyMSTeam Member

Wow, 14 drugs is incredible and scary. I've been off all MS meds since 1994-1996 and only take MD prescribed meds since self rehabilitation.

April 8, 2017

Related Questions

View All
A MyMSTeam Member asked a question 💭
Troy, MI

A MyMSTeam Member asked a question 💭
Rex, GA

A MyMSTeam Member asked a question 💭
Troy, MI

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In