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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Ocrevus

A MyMSTeam Member asked a question 💭
Bradenton, FL

Just finished my first dose of Ocrevus. First dose is split into two sessions, two weeks apart. My second will be in November, 6 months after the first. So far, I haven't had any noticeable side effects other than exhaustion. That is subsiding each day ....

If you are considering this drug, please keep in mind the purpose of this drug is to halt the progression of MS. You will no doubt read about symptoms getting better. I have so many symptoms, time will tell. Although I have noticed… read more

May 31, 2017
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Answer Summary

Members shared their experiences starting Ocrevus for multiple sclerosis, with many reporting meaningful improvements including reduced brain... Read more

Members shared their experiences starting Ocrevus for multiple sclerosis, with many reporting meaningful improvements including reduced brain fog, better mobility, decreased neuropathy in legs and feet, and less severe fatigue, though most noted that noticeable benefits took three to four months to appear. Several members offered practical infusion tips, including drinking plenty of water two days before and after treatment to reduce headaches and help with IV placement, bringing snacks and hard candy for dry throat, eating a good breakfast, and planning extra rest for a few days post-infusion. A recurring theme was cautious optimism and mutual support, with members emphasizing the importance of patience, staying hydrated, coordinating surgeries with neurologists to time them near infusions for optimal healing, and celebrating even small improvements as victories in managing a difficult disease.

A MyMSTeam Member

hi everyone ..... finished my 2nd 1/2 dose ... my first full dose will be in November. I have seen a little improvement .. I have the feeling back in my feet ... and I can pick up my right leg ... yayyyy ... I need to really build up strength in my legs ... that begins next week, PT for me ...so far, I haven't been disappointed in my journey with ocrevus ....

June 16, 2017
A MyMSTeam Member

good luck ..... i've noticed a few improvements, especially in my legs .....keep the faith .....

June 23, 2017
A MyMSTeam Member

@A MyMSTeam Member - after my first infusion, if I wasn't drinking enough water, my headache and other symptoms were worse. It was pretty important for me, and I have heard from some other Ocrevus patients that they have had similar experiences. I started drinking an increased amount of water 1-2 days before each infusion to help with getting the IV started as well as to help my body process the medicine during the infusion. I also drank a good amount of water and fresh pressed juice each infusion. It definitely helped me :-) I hope it goes well for you!

August 4, 2017
A MyMSTeam Member

Bring some hard candy in case your throat gets dry. Mine did. And bottled H2O
I also brought healthy snacks

September 17, 2017
A MyMSTeam Member

Just past the first month since infusion. Fog and tiredness is better. Leg and balance are coming along. I had read somewhere were 3 months for unnoticeable inprovement. Folkes this what I read. Hope all is well for us Ocrevus used. We should call ourselves "OXY'S.🤣🤣

August 2, 2017

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