How would you describe the fatigue that we get plagued with. I was asked this question recently and my answer was, I feel like Winnie Sanderson (Hocus Pocus) is sucking the energy from me once she's given you the magic potion. Answer I got, was Ahhhh, now I understand, you must feel like crap, would you like a cuppa ๐
Fatigue..... its like trying to walk with concrete boots on and you are inside a bubble and you cant see the walls as its all clear but you simply cant get through the bubble its like an invisible wall is in front of you.
What i want to know is the rationale of MS fatigue.
I can have the absolutely worse night, but the best day.
I can have a brilliant sleep and have the worse day.
Yesterday i got up firing on all cylinders, did some chores just gentle ones, was looking forward to going out at 10am with my care worker to the garden centre (i use wheelchair). I only did a few things, took my dog out she walks by the side of my mobility scooter, we were only out 24 minutes. The morning was lovely not too hot, the sun was shining.
I parked my scooter in its little parking spot in our garden near the front door, and BLAM the invisible wall came down and the concrete boots came on.....that was the end of my day. I spent the rest of it, on my recliner feeling exhausted.
I mean really what was that all about?
I think It's worse now then before because I really can no longer do to much,& when I do I fine myself bent over barely able to fine a place to sit down.
fatigue hits me often, like a vail comes over me and I get very heavy. I am like a wilted flower needing water to perk back up. I take Ritalin for my fatigue and it has helped me most often when I have to get out,, drive, groceries etc. It gives a sense of normalcy (old healthy self) and does not last long (like 2 hours low dose for me) i plan my activities according to the time frame of alertness.
FATIGUE is the worst I heard a neurologist say that fatigue in MS is like getting allot of sleep and never feel rested.thing I hate about it is that things you once enjoyed hold no interest to because it takes to much energy. I also hate that you always have to pace yourself so that you don't overdo.
I feel like I'm in the ocean desperately trying to make it shore, but the waves and undertow keep sucking me back. I see my friends having fun on the beach, but I can't get there, no matter how hard I try.