Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Halifax, NS

Any one have any success or otherwise with this medication. It's supposed to improve walking speed by 20 %. Risk of seizure

June 7, 2017
 · 
Reactions
A MyMSTeam Member

I'm having reasonably good luck with it. My gait is better, I'm quicker and I haven't had nearly as many falls. If you start taking it, it's a great time to get in with a physical therapist.
It all depends on what your body can tolerate. If you don't see a difference in the first month then stop taking it. If you're already at risk for seizure then your neurologist probably won't prescribe it.

June 9, 2017
A MyMSTeam Member

Sorry I made a mistake there are 12 tablets in each container and I also take the tablet every 12hrs.I take it at 6am and 6 pm 12hrs apart.You need to do this to not get a seizure. Which will happen if not taken the right way.

July 30, 2017
A MyMSTeam Member

The only time for the seizure if you do not take it at the right time.12 hours between each dose.I take mine at 6oclock am at then at 6oclock pm Make sure to take it exactly 12 hours.Other than that very good med.

June 7, 2017
A MyMSTeam Member

I tried on clinical trial, did improve my walking speed slightly.
Still on it, discovered an unexpected side effect, haven't had fog since I started it. Beneficial, and Super.

June 7, 2017
A MyMSTeam Member

Hi!!!!This is Joyce.I am on this drug it is called Fampyra.The cost up here in canada is $549.00 for 4 little containers that hold 9 tablets.Yes it does work for me.Hope it does for you.Myinsurance covers the cost.Have a good evening

July 30, 2017

Related Questions

View All
A MyMSTeam Member asked a question 💭
Brampton, ON

A MyMSTeam Member asked a question 💭
Toronto, ON

A MyMSTeam Member asked a question 💭
Murfreesboro, TN