I went into my neuro a few weeks back as well as my opthomologist. My MRI is stable. YAY! However my opthomologist gave me other news. I am starting to go blind. I have almost complete tunnel vision in my left eye and my right eye is following the same course. The optic nerves show significant atrophy as well. My neuro is unsure if this is behind the scenes activity however but believes it is. I am now on a restricted driving ability. RE only driving within a 10 mile radius from my house and no⦠read more
My husband is on Remicade and was on Embrel before for his Ankylosing Spondylitis, both of which are supposed to destroy the immune system. He has remained very healthy. The only thing he has to do is when he starts feeling sick is get an antibiotic. This is only happened twice in 4 yrs. We are around our grandson all of the time. He is in school. My husband wouldn't be mobile without his medications. They do work. If I have to I will use them also. I am on Copaxone for my MS right now. You have to take care of yourself first and foremost.
Let us pray right now thank You God for the beautiful life and children you have blessed Angelique, to continue see her children and grandchildren to come put Your hands on All Your Children in Jesus Mighty Nameππ½ππ
Hi Maggie. Last January or February I noticed a dark spot in the center of my vision in my right eye. I know that is a symptom of macular degeneration, but I wasn't worried because I have enough eye exams to know that, at least, is not one of my problems. Then the blur started to spread. On Easter Sunday my whole field of vision blurred out except for a few horizontal skinny streaks. Now, at the tail end of September, my eye has recovered as much as it is likely to. I have about 3 skinny streaks where light comes thru. Nothing more. I went to an eye specialist who said my optic nerve was so inflamed it hemorrhaged. Stayed that way a few weeks, then it actually BROKE. I had no other neurological symptoms at the time besides my usual swallowing problems and severe leg pain. I went to a new neurologist and he was so sure that IF I ever had MS, I don't now. HE said for many people with MS their case goes benign after about 15 years of active attacks.??? I have heard SO many different opinions of diagnoses for myself that I don't even know what to think any more. Except that I think I will never see out of my R eye again. And blurriness comes and goes out of my L eye. Back in 1988 both eyes fuzzed out on me for 4 months. Thank God I recovered totally from that time. I am glad I started learning how to function as a blind person - cane, Braille, marking my clothes colors according to placement of safety pins, braille dots on pkgs of food, canned goods, etc. It was daunting, but I was adjusting. I had to. I was a single mother with 2 young kids. Life does not stop bcuz of our disabilities. I learned that gathering skills and knowledge was what wd keep me going in life thru ALL disabilities. It was HARD to learn finding my way to my mailbox, but I did it. I knew the Braille alphabet by sight, but trying to read with my fingers was terribly hard. But I did it. I was still on primers when my sight returned, but I was DOING it. I recommend to anyone who is in danger of going blind, LEARN what services are out there for blind people. Learn the Braille alphabet - it follows a common sense pattern and is easy to learn WHEN U CAN STILL SEE. Not quite as easy when your fingers have to figure it all out. Being blind STINKS, but you can do it if you have to.
If ever there is a time to take bigger meds it's when you are going blind! I detest the side effects of steroids but I wd try them again if my optic nerves failed. Big question - is it both eyes equally or not equal? DEFINITELY find an opthoneurologist. In early 1989 my dbl vision turned to quadruple, then pure blurriness of grays, then to smudgy bits of light. It looked like someone smeared vaseline in my eyes. Living in Boulder, CO at the time I was blessed to be connected to an office called Center for People With Disabities..A wonderful young woman came to my house almost daily to teach me how to walk with a cane, mark colors of my clothing with little safety pins arranged in various patterns. She taught me that to cook I would need to learn to put my hands IN everything to know what I was doing. We marked boxes and cans in my cupboards with superglue dots making braille letters. The hardest of all was learning to read Braille with my fingers. Writing it was not hard, but FEELING the dots...yikes! I thought I would never get it. After 4 months I could actually read some of the easy practice lessons,.and THEN my sight came back in about 4 days. THANK YOU GOD! Let me tell you, it is hard, but it can be done. I already knew the Braille letters having learned them in
high school to pass notes in class with my bff - also sighted. I still write Christmas lists and things I want to keep private in Braille. My bff and I found out we could write AND read Braille faster if we connected the dots and see each letter as a unique line or shape. If there is the chance you could go blind, do yourself a gigantic favor and learn the Braille alphabet NOW. It will help a lot if your fingers need to become your eyes.. Each letter is a combination of dots placed in an imaginary CELL with 6 possible dot spots. It is a very
logical and clear system. Even if you don't memorize it all right now, at least get familiar with the system. I will be forever grateful that my sight came back. altho I have faulty color vision and often have a lot of blurriness I have never been blind again. I sure hope I never will, but at least I know I can survive it. And you can too. Walking outside was the hardest thing to do and I would have gotten a dog if I stayed blind. Yes, blind folks need some assistance from sighted family and friends, but you would be amazed at how much you CAN do. Now start learning those Braille combinations!