I think being totally blind is the worst I can think of...., but that's my opinion from the perspective that I'm not! I have been 'blind' in one eye for a short period a long time ago, one of the reasons that I think/claim that 'my' MS started long before the official diagnosis in my early 40's...
Another opinion I have (have you noticed I'm 'full of them'..., I'm dutch!) is that becoming blind in case of having been able to see before, sounds worse to me then when having been born blind....... Not having known ever what 'seeing' is, seems less worse to me than having been able to in the past...... The phrase "You do NOT know what you miss" then sounds a lot more positive.........
But that's me talking from, on this particular subject, a (so far?), in comparison to actually being blind, 'luxurious position'.....
I'll stop here..., the hole is getting deeper.....

Sorry, in answer to the question...., because they are told?... BTW, I suddenly remember watching a most wonderful documentary about a person going from having been blind from birth, 'suddenly' being able to see due to the work /actions of some most wonderful surgeons.....
You all take care!, I'm going to have a quiet moment now although not knowing 'the length of it'..... 🤫

There is an Australian man named David Sinclair , who has a few research labs that are working to cure blindness and I believe they are ready to move trials from mice to humans. I saw a video of him where he says the eyes are actually part of the brain, and contain the same tissue and cells .once they can cure blindness in humans they will be able to cure diseases like ALS and MS as well.

@A MyMSTeam Member You asked an interesting question. I don’t really have an answer about ‘how do they know they’re blind’, but it brings to mind Edwin Abbott and his concept of Flatland. You might Google it or even check YouTube for a video on it, it is an utterly fascinating discussion that gets to the heart of your question. It might make you ask a follow up question: “how do I know I’m not blind“?

Mentioned Users

A MyMSTea...

Ooh! @A MyMSTeam Member
Your response is very interesting and warrants more study, thanks!
Is that anything like... allegory of the cave-- we don't use our freedoms bc nobody ever told us we were free to leave the cave?
Gazing steadfast on a picture you know?
I will do some searching about your suggestion-- thanks much!!

🦋

Mentioned Users

A MyMSTea...

I've been going blind or peripheral vision for about 30 years
It's called
Best Vittelform macular dystrophy plus now ihave other issuesso I've new for years that I can see less all time gradually
Isee less but I do my best to adopt
Blessings ❤️ 🙌 ❤️ 🙌 ❤️ 🙌