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A MyMSTeam Member asked a question 💭
Bristol, RI

UTI's and MS & Interstitial Cystitis. What does anyone know about this. Was told I had UTI (Urinary track infection) . Antibiotics are not curing it. I suffer with tremendous pressure in my bladder and intense orgasmic sensations when peeing. HELP!!! :-(

August 2, 2017
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A MyMSTeam Member

Hi there. Yes I suffer this as well. I have been in for day surgery to have steroid injections into the walls of my bladder 3 times. I was only in 2 days ago for this to be done again. You have a general anesthetic so you don't know anything about what is happening at the time. I have not suffered any side affects with any of these procedures. I figure if this is going to give me relief then I am happy to continue to have this done. I m not incontinent but like you have that pressure feeling of not being empty. It is called (Intravesical Gentamicin Injection) You may need this every 6 months. Trust me it is worth it. Hope this helps :)

March 22, 2018
A MyMSTeam Member

Hang in there, I am going through a very similar situation.

August 14, 2017
A MyMSTeam Member

I just started DMannose a few weeks ago. I think I have the same problem, take antibiotics and never have urine rechecked. Then I think I still have it, then it gets worse. So sick of it. I have Retention and Spastic bladder. Waiting for that nuero stim bladdervdevice to come out that u can get MRI's with. Made by Medtronic.

Just restarted my Ampyrha after two weeks off, now it has called me major Retention issues do stopped it. Can't win.

August 3, 2017
A MyMSTeam Member

I take methamine Hipp 1Gr 2x a day prescribed by my urologist. A decision that so far is working. I also watch sugar intake

August 3, 2017
A MyMSTeam Member

Don't let the UTI............. go I just got out of the hospital for one, was in there for 4 days.............A good thing that I have learned to take is called Mannose cranberry capsols its all natural cranberry. You can find them at a health food store................hope you do well!

August 3, 2017

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