Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMSTeam Member asked a question 💭
Mesa, AZ

I have had many nerve related diagnosis over the years, lately becoming more frequent. I had RSDS in my left foot 10 years ago, resulting in spinal injections 3 times a week as well as PT for 5 months. About 5 years ago, I was diagnosed with TN, placed on Gabapentin 300mg twice daily for 2 months. TN went away, (I was hoping for good). Last year in Oct 2016, TN came back with a vengeance, I was taking Gabapentin 1200mg daily until Feb 2017. In April TN returned as well as a new diagnosis of… read more

September 10, 2017
 · 
Reactions
A MyMSTeam Member

14 years ago someone in my support group had no leisons anwywhere. Fast forward and she has many more ms symptoms. As mentioned I'm my story I was atypical and it took a while to get a diagnosis. I saw several neurologists and most were recommended by my neurologist. That is why I participated in an ms study, more observations. I think of each doctor as another research tool. I am fortunate to live where their is an abundance of options. I have also seen two neuropthomologists. I have no medical training and wouldn't assume to know what you have. It sounds horrible so I hope you can get some relief. Warm thoughts.

September 11, 2017
A MyMSTeam Member

I had an Mri last year as neurologist said I had lots of symptoms for ms. Mri came back with no leisons, so not ms. Instead, they said I needed a laminectomy, nerves in my cervic
al spine are crushed so they needed freeing.
I had the opperation last Sept, but still have lots of the symptoms. My walking is terrible, I drag my foot, pain almost everywhere, my left side feels on fire most of the time.
Frequently going to the loo during the night, 4/5 times. Numbness and tingly feelings in my arms and legs.
Hopefully going to be referred back to the neurologist.

September 23, 2017
A MyMSTeam Member

Joanne...sounds horrible and terrifying!

Orange...I have been seeing a Neurologist. I saw him on Thursday. The MRI I had in June was of the brain and came back normal. On Thursday he ordered an MRI with contrast of the optical nerves. I'm just wondering if I should request an MRI of the spine as well. Is it even necessary if the previous brain MRI was normal? I am absolutely not looking for a diagnosis of MS, just looking for answers.

September 10, 2017
A MyMSTeam Member

For Me I woke up Paralyzed on Left Side. I went to ER where they said I had a Stroke was sent to a Neurologist where He did Cat Scan, MRI and Evoke Potential and said I had MS and I had not had a Stroke.

September 10, 2017
A MyMSTeam Member

If available, go see a neurologist who specializes in ms. You may have to travel but if you've got it you may want to Have the option to be on a disease modifying rx.

September 10, 2017

Related Questions

View All
A MyMSTeam Member asked a question 💭
Oxnard, CA

A MyMSTeam Member asked a question 💭
Chicago, IL

A MyMSTeam Member asked a question 💭
Denver, CO

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In