I have had many nerve related diagnosis over the years, lately becoming more frequent. I had RSDS in my left foot 10 years ago, resulting in spinal injections 3 times a week as well as PT for 5 months. About 5 years ago, I was diagnosed with TN, placed on Gabapentin 300mg twice daily for 2 months. TN went away, (I was hoping for good). Last year in Oct 2016, TN came back with a vengeance, I was taking Gabapentin 1200mg daily until Feb 2017. In April TN returned as well as a new diagnosis of… read more
14 years ago someone in my support group had no leisons anwywhere. Fast forward and she has many more ms symptoms. As mentioned I'm my story I was atypical and it took a while to get a diagnosis. I saw several neurologists and most were recommended by my neurologist. That is why I participated in an ms study, more observations. I think of each doctor as another research tool. I am fortunate to live where their is an abundance of options. I have also seen two neuropthomologists. I have no medical training and wouldn't assume to know what you have. It sounds horrible so I hope you can get some relief. Warm thoughts.
I had an Mri last year as neurologist said I had lots of symptoms for ms. Mri came back with no leisons, so not ms. Instead, they said I needed a laminectomy, nerves in my cervic
al spine are crushed so they needed freeing.
I had the opperation last Sept, but still have lots of the symptoms. My walking is terrible, I drag my foot, pain almost everywhere, my left side feels on fire most of the time.
Frequently going to the loo during the night, 4/5 times. Numbness and tingly feelings in my arms and legs.
Hopefully going to be referred back to the neurologist.
Joanne...sounds horrible and terrifying!
Orange...I have been seeing a Neurologist. I saw him on Thursday. The MRI I had in June was of the brain and came back normal. On Thursday he ordered an MRI with contrast of the optical nerves. I'm just wondering if I should request an MRI of the spine as well. Is it even necessary if the previous brain MRI was normal? I am absolutely not looking for a diagnosis of MS, just looking for answers.
For Me I woke up Paralyzed on Left Side. I went to ER where they said I had a Stroke was sent to a Neurologist where He did Cat Scan, MRI and Evoke Potential and said I had MS and I had not had a Stroke.
If available, go see a neurologist who specializes in ms. You may have to travel but if you've got it you may want to Have the option to be on a disease modifying rx.