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A MyMSTeam Member asked a question 💭
Du Bois, PA

The new MS specialist I meet with today thinks I should switch to new drugs. I wanted to know if anyone has or use to have any experience with either drug Ocrevus or Lemtrada? I would like as much info as I can get to make an informed decsion.

September 19, 2017
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A MyMSTeam Member

I did R1 in April. It went well. They've been using it in Europe for the last 25 years. They recently made it the first line DMD. That's why I was comfortable with my decision. That and the thought of not having to take MS medicine in the future. As usual, the US is late to the party. Let me know if you want more info. I'd be happy to share it. They have good Facebook groups.

September 20, 2017
A MyMSTeam Member

I'm still in a clinic trial for ocrevus, so was able to start getting it last November. I love it. Zero side effects. I failed two therapies before ocrevus and was rapidly declining. Since starting ocrevus I have had no disease progression, my symptoms have greatly improved to the point I barely notice them and haven't developed anything new since last year. It's been a ode changing treatment. Highly recxmend giving it a shot if your doctor is offering to you. Good luck!

September 20, 2017
A MyMSTeam Member

Hi there ive just had lemtrada last week what would you like to know and Ill happily tell you x

September 19, 2017
A MyMSTeam Member

Hi @A MyMSTeam Member
I'm looking for a second opinions about the drugs. Have you been hit with any of the symptoms/ how serve were they and what were they?

September 25, 2017
A MyMSTeam Member

P.S. I take it for RRMS not PPMS. That could make a difference in what kind of results you might see.

September 20, 2017

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