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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Tried Frampydine

A MyMSTeam Member asked a question 💭
Inverness, UK

I am about to start on a 4 week trial on Frampydine has anyone else been on this and what feedback can you give me. Thankyou.

September 28, 2017
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A MyMSTeam Member

I'm on it, at first it caused horrible stomach pain but was helping my legs. The pain subsided and it was all so worth it.

September 29, 2017
A MyMSTeam Member

I can actually walk on my property without my legs burning, I recover faster from walking, I can walk faster than before, my legs don't ache as much when it's hot, and it has made me more alert. I'd go through the stomach pain again to get back on this medication.

September 30, 2017
A MyMSTeam Member

You'll be fine. I was nervous at the beginning too but it was all a waste of worry :) and I dislike meds

September 29, 2017
A MyMSTeam Member

Yes I've been on it for about 3 years. Initially caused some insomnia and does still after 2nd dose.most people have no problem with the med. It's called ampyra here in the usa. But it helps me

September 29, 2017
A MyMSTeam Member

Thanks very much Melanie
What differences are you getting from taking it
Well Done 😊

September 29, 2017

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