My doctor has kind of left it up to me to do the research on what meds I should start taking for my RRMS recent diagnosis. I'm fearful of the injection method, but he said Copaxone is probably one of the best meds out there right now. I would like to get as much advice/feedback as I can from others who have tried various meds. I need to pick something and start on it soon!
Thank you all!
Yes. copaxone works !!! I have been on copaxone 2001-2012- no noticeable symptoms of my ms-I lost my insurance went back on copaxone in 2014 after a horrible exacerbation !! Solumedrol restored my walking ! But the residual is my balance so walking outside with a cane is necessary which I do not like ! But it helps ., i run at the gym ! I don't know why running is easier than walking .. I have a Rail at the gym which I touch , hang on to and my running friend helps me so much to just the touch of the fabric of my running partners shirt transfers stability to me .. don't understand but this is my ms and ability to run. ? ( I do struggle when I finish -my legs are like jelly and I hang on to. Something until I re energize my legs )
Oh the question I have my scan shows no active lesions in my brain or spinal cord so does this mean my ms is controlled by cooaxone and in remission ? I know we may never truly in remission .. silent demyelination may be occurring..
YIKES!! I guess I will get used to it! Thank you for the insight!
Truefully, I feel that everyone on MS treatment should pay attention to liver profiles. When starting one get a baseline of complete liver profile, every 6 months recheck. Everyone responds to the great drugs out there differently, I am not saying this to cause anyone concern but I feel it is important info to share. I am one of the 1 out of, god knows how many people, that had serious kickbacks from 2 of the drugs. I never wanted to say anything but the more I think of it, a lot of people are not aware of what some drugs do to the body. I have heard nothing but good news about Copaxone. The company that markets the drug has monthly luncheons all over the place. Very good to go, you learn a lot and all questions will be addressed
I inject rebif 3 times a week and thought i would never get used to it as used to faint at the sight of a needle as a child but its amazing how quickly you adjust. Its part of my routine now and i give it very little thought. Not nice but necessary. The only issue i have had is a couple of lumps under the skin which was very sore for a few days due to not rotating enough so thats really important to do.
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