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Real members of MyMSTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Medication Suggestions

A MyMSTeam Member asked a question 💭
Apex, NC

My doctor has kind of left it up to me to do the research on what meds I should start taking for my RRMS recent diagnosis. I'm fearful of the injection method, but he said Copaxone is probably one of the best meds out there right now. I would like to get as much advice/feedback as I can from others who have tried various meds. I need to pick something and start on it soon!

Thank you all!

October 2, 2017
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A MyMSTeam Member

I took copaxone, could not tolerate the pain while shooting up..like someone took a baseball badge and hit you with it full force...skin atrophy and pain on the injection side, otherwise it worked well...

May 16, 2023
A MyMSTeam Member

@A MyMSTeam Member,

It may sound interesting because it sounds novel.
However, I hope you or insurance didn’t pay him/her because YOU are doing ALL the work.
IMO, he/she quit his/her responsibilities as a MD.
If I can change my own oil, I won't need the mechanic any longer.
Anyone on here may suggest DMT therapies that worked for them, but we ALL are different and respond differently to medications.
Nobody in here has seen your MRI results or any medical issues you may have to make an educated suggestion.
Based on what I said, the neuro FAILED YOU and needs to be replaced ASAP.
Your health can't be allowed to be played with.
Good Luck!!!

January 2, 2024 (edited)
A MyMSTeam Member

Yes. copaxone works !!! I have been on copaxone 2001-2012- no noticeable symptoms of my ms-I lost my insurance went back on copaxone in 2014 after a horrible exacerbation !! Solumedrol restored my walking ! But the residual is my balance so walking outside with a cane is necessary which I do not like ! But it helps ., i run at the gym ! I don't know why running is easier than walking .. I have a Rail at the gym which I touch , hang on to and my running friend helps me so much to just the touch of the fabric of my running partners shirt transfers stability to me .. don't understand but this is my ms and ability to run. ? ( I do struggle when I finish -my legs are like jelly and I hang on to. Something until I re energize my legs )
Oh the question I have my scan shows no active lesions in my brain or spinal cord so does this mean my ms is controlled by cooaxone and in remission ? I know we may never truly in remission .. silent demyelination may be occurring..

October 3, 2017
A MyMSTeam Member

YIKES!! I guess I will get used to it! Thank you for the insight!

October 2, 2017
A MyMSTeam Member

Something about injection medicine that helped me. I was looking at photos of bruises and wounds caused by medicine and was in fear that will happen to me. But the fact is we don't know how did those people do their injections. I met one man that had problems caused by rebif injections cause he was doing something we were explicitly said not to. He was constantly using same spot for injection. But if you warm your meds before, desinfect your skin, use right parts of body you should be okay! Also good thing is to give yourself injection before sleep and take something like paracetamol. Hope you're doing well!

September 22, 2023

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